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Sniffy

Hi everyone, am soooooooooo glad i found this group, have been reading through some other posts and its so comforting to realise your not alone. Im a mum to 2 boys age 13 & 10, and am currently waiting for a review from a peadiatric consultant for my youngest lad. At age 2 he was reffrerd by a helath visitor for a delay in both speech and walking, after what felt like an eternity he was diagnosed with both hypermobility and developmental delay, was told by consultant however he would catch up eventually, not 2 worry and was promptly discharged. (consultant did say however she would review him just b4 he moved up to high school just to check up on him, this is the appointment we r currently waiting for)  Fast forward to the present day, and im desperate for some advice from other perants, He hand flaps a Lot especially when excited, he bangs his feet also as if running on the spot (this happens at same time as hand flapping) he also pulls faces (dont know n e other way to put it,lol). He has avid dislikes of the most peculier things google earth being the current one, at school in the payground he prefers to walk round alone even though he does have freinds who want to play with him, He also hates the feel ov denim jeans, he also finger bites a lot.he also overly sensesitive to things and will become emotionally attahced to inanimate objects. im just so confused, have read up about autism etc and he does fit in with this but then again i dont wanna sound like a mum whos trying to get my son diagnosed with somthing he hasnt got, if that makes sense! oh bugger im waffling now,lol. N e way thankyou in advance for n e advice n e one can give me, it will b greatly appreciated as im feeling a likkle bit lost at the moment,xx 

Parents

  • Hi - welcome.  Have you got your appt with the consultant?  Your son won't get diagnosed with something he hasn't got, quite often parents find it difficult to get their child diagnosed + have to fight for it.  If he is autistic then it's important he does get diagnosed, especially before he gets to high school.  The move is likely to cause him a lot of stress if he is autistic.  A diagnosis could help him get a teaching assistantg + also make the school aware of his needs.  Waiting for a diagnosis can be an anxious time.  Try to look on it this way, your son has already received a diagnosis of hypermobility + development delay from an early age.  If he is autistic then that should clarify things as you can learn about how it affects him as an individual + so be able to help + understand him more (not to say you don't do all that already!).  You've done the right thing by reading some of the posts.  It's good you don't feel alone.  That's 1 of the reasons this site with all its info + the posters are here.  Let us know how things go + ask anything you want whenever you want.  Good luck with everything.

Reply

  • Hi - welcome.  Have you got your appt with the consultant?  Your son won't get diagnosed with something he hasn't got, quite often parents find it difficult to get their child diagnosed + have to fight for it.  If he is autistic then it's important he does get diagnosed, especially before he gets to high school.  The move is likely to cause him a lot of stress if he is autistic.  A diagnosis could help him get a teaching assistantg + also make the school aware of his needs.  Waiting for a diagnosis can be an anxious time.  Try to look on it this way, your son has already received a diagnosis of hypermobility + development delay from an early age.  If he is autistic then that should clarify things as you can learn about how it affects him as an individual + so be able to help + understand him more (not to say you don't do all that already!).  You've done the right thing by reading some of the posts.  It's good you don't feel alone.  That's 1 of the reasons this site with all its info + the posters are here.  Let us know how things go + ask anything you want whenever you want.  Good luck with everything.

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