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Post-self-diagnosis: Feeling upset and worried

ShinyBrownEyes
over 1 year ago

Hello everyone,

I've recently completed a number of assessments and, with high/very high scores in all of them, have been referred for NHS adult diagnosis for autism and ADHD.

  • Autism Spectrum Quotient
  • RAADS-R
  • CAT-Q (Camouflaging Autistic Traits Questionnaire)
  • The Aspie Quiz
  • ASRS-v1.1 (Adult ADHD Self-Report Scale)
  • HBI-19

This has all happened in the last two weeks and I feel all at sea and like I'm re-evaluating my whole life (I'm in my forties), but doing this very much on my own. I have no real friends, only my wife, and decided to reach out here on Saturday. My post got removed after a few minutes as suspected spam/abuse, pending review. I was given the option to complete an appeal form, which I did saying I was very sorry if I had broken any rules (I'd had read them before posting) and that I did not know what I'd done wrong. There was a notification on my profile saying that my post was under review but that then disappeared by Sunday afternoon and I've had no contact from the moderators involved in this (I don't even know who to contact and the FAQ say if I email the main address I may have to wait 10 days).

I wanted to be a part of this community to learn more about myself and others' experiences, but I just feel even worse about myself now. Are there some types of autism presentations that aren't allowed here? I'm so confused because I was careful to spent a fair bit of time on this site exploring others' posts before taking the leap and joining myself. Putting myself out there felt like a big step and I feel like I've been instantly rejected. Even though I'm used to rejection it's never easy and I thought that, for the first time, I'd maybe found a community that would understand. I joined up to Wrong Planet yesterday but it seems very USA-based.

Sorry if this seems a bit whiny. I just don't know what I'm supposed to do to properly introduce myself here.

Parents
  • over 1 year ago

    I won't reiterate what's already been said about the temperamental automated filter here. Regarding feeling at all at sea and re-evaluating your life, this is very normal. It does get easier as time passes, but it can take a while (it's taken me about two years since actual assessment and maybe still ongoing on some level). Whatever you're thinking about yourself, other people here have thought about themselves when they were coming to terms with their autistic identity. It's hard. Be kind to yourself.

Reply
  • over 1 year ago

    I won't reiterate what's already been said about the temperamental automated filter here. Regarding feeling at all at sea and re-evaluating your life, this is very normal. It does get easier as time passes, but it can take a while (it's taken me about two years since actual assessment and maybe still ongoing on some level). Whatever you're thinking about yourself, other people here have thought about themselves when they were coming to terms with their autistic identity. It's hard. Be kind to yourself.

Children
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