my boy just diagnosed with ASD

Smile just found you , hope you dont mind me asking for any help as my boy  has recently been diagnosed with asd , where do we go from here?    schools a worry !!!! his needs come first he also has unilateral hemiplegic cerarble palsy he is 9 yrs old . we have a lot of problems regarding the home we live in at present  we ar ein a council house  and small adaptions have been done    ie rails  , split steps  , but they are very reluctant in helping us any futher ie toilet needed downstairs and a wet room , they are not helping us at all :(   any advice please  on who are wot to do x   thankyou aarons mammy xx

Parents
  • Hi - welcome to the siteSmile.  Sounds like you've a lot going on.  1st off :  you've come to the right place because there's lots of info via the home pg + also the posts so have a look around.  I always saying it's understanding how autism affects your son as an individual.  Does he talk and/or understand what's being said to him?  It would be useful to the posters if you could give us a bit more info on him so our answers can be more helpful to you.  2nd off : school.  Is he in mainstream or a special school + has he got a statement of educational needs to give him the support he needs.  If he does have a statement then it needs to take his diagnois of autism into account.  3rd off : housing.  Councils are short of cash thanks to government cuts affecting those who need help the most.  Even in the good times(!?) they would have thought twice about a wet room because of the cost.  Others may well be more knowledgeable than me, but if I was in your shoes I'd check out online disability sites for info (don't know if the nas has anything on this) + also ring up CAB for advice.  They are unlikely to offer you a move because a wet room would be hard to find.  There may be houses in the private rental sector with 1. Sometimes they were adapted + then that person who needed it passed away but the property can be hard to let if the wet room isn't in keeping with the rest of the house, such as having to go thru the kitchen to get to it.  But, as you'll know, unless other adaptations have also been made to the house then it might not be suitable + the rent may be higher.  You could also ring/email your local councillor (name should be on the council's website) to see whether they can help, or your mp.

Reply
  • Hi - welcome to the siteSmile.  Sounds like you've a lot going on.  1st off :  you've come to the right place because there's lots of info via the home pg + also the posts so have a look around.  I always saying it's understanding how autism affects your son as an individual.  Does he talk and/or understand what's being said to him?  It would be useful to the posters if you could give us a bit more info on him so our answers can be more helpful to you.  2nd off : school.  Is he in mainstream or a special school + has he got a statement of educational needs to give him the support he needs.  If he does have a statement then it needs to take his diagnois of autism into account.  3rd off : housing.  Councils are short of cash thanks to government cuts affecting those who need help the most.  Even in the good times(!?) they would have thought twice about a wet room because of the cost.  Others may well be more knowledgeable than me, but if I was in your shoes I'd check out online disability sites for info (don't know if the nas has anything on this) + also ring up CAB for advice.  They are unlikely to offer you a move because a wet room would be hard to find.  There may be houses in the private rental sector with 1. Sometimes they were adapted + then that person who needed it passed away but the property can be hard to let if the wet room isn't in keeping with the rest of the house, such as having to go thru the kitchen to get to it.  But, as you'll know, unless other adaptations have also been made to the house then it might not be suitable + the rent may be higher.  You could also ring/email your local councillor (name should be on the council's website) to see whether they can help, or your mp.

Children
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