New here - Diagnosis seems like a can of worms.

My son (16 years) has been diagnosed with ASD about a week ago.  This wasn't a huge surprise - but what is a surprise is the fact that it seems to have opened a can of worms.  Instead of feeling like my husband and I (and our son) are going to be well supported, it seems there is very little support/advice.  Hopefully, I'm jumping to conclusions and it's early days, but I don't want to be naive to the reality that we're going to have to fight a lot harder for our son than we at first realised.

So thankful for websites like this one.

Parents
  • Even for young children with ASC there is virtually nothing.

    Our 8yo is awaiting CAMHS support for anxiety and they haven't supported her.  I had to fight for her place in an ASC unit.  The school promised 1-2-1 in mainstream and then decided to lie about funding not being available, and expected her to manage in mainstream with nothing.

Reply
  • Even for young children with ASC there is virtually nothing.

    Our 8yo is awaiting CAMHS support for anxiety and they haven't supported her.  I had to fight for her place in an ASC unit.  The school promised 1-2-1 in mainstream and then decided to lie about funding not being available, and expected her to manage in mainstream with nothing.

Children
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