Late middle age insight

Hi.

I'm Gaz, and I'm 53, and I recently made the interesting discovery, by accident, that I fitted the profile of Asperger's syndrome. Which was a shock, but also explained a lot about the last 53 years...

I took the AQ test and scored 42. Now, I'm uncertain of the relevance of this but one of my friends took it as well, and scored 17.

So, armed with this, a week's worth of research and reading these community notes I made an appointment to see my local doctor.

Who told me *You've got a job. You can't have Asperger's. That's Autism. So you don't have it*, gave me 5 printed A4 sheets of information on Asperger's in infants and sent me home.

I'm feeling somewhat agrieved, and in no small measure let down.

Where do I go from here?

GAZ 

Parents
  • To pick up re CAMHS saying children grow out of ASC this is a common misconception, now so established that the Autism Act and the NICE Guidelines for adults, and all the empty promises seem unable to contradict.

    The professionals confuse "cause" in the context of "cause and effect". Their idea of cause is the underlying genetic or developmental CAUSE, and EFFECT is just the symptoms.

    So as teenagers reach maturity and begin to separate into independent adult lives, the bullying and other difficulties with the peer group, that become so ciritical in tenage years for people on the spectrum (even though they may take longer to mature due to delay factors) DISSIPATE. That part of the problem seems to go away.

    Also confidence building, and learning of substitute skills makes a difference. And conditioned changes, like less obvious gaze aversion or subdued reactions to stress make a difference.

    That's also why the psychologists and psychiatrists out there think a bit of CBT and a pill cure the problem - they only do temporarily.

    Because what the professionals (and NAS) don't seem to comprehend is that there is another kind of cause factor: part of the characteristics of ASC are actual real difficulties - sensory differences and sensory overload, the fact that social communication (while it might appear to improve a little) doesn't go away, and the fact that people on the spectrum do fixate on things. These CAUSES continue to cause problems.

    But the psychiatrists and psychologists have totally failed to recognise these CAUSES.

    That's why treatment up to now has focussed on children, and why they think you grow out of it. It's not that we grow out of it, but THEY have signally failed, through gross negligence, to actually prepare strategies for adults.

    That's why transition is still a mess ( oh but they say transition isn't important as you'll grow out of it).

    The Autism Act wont amount to anything until the failure of psychologists and psychiatrists to properly understand this condition is brought centre stage. It is a gross failure of the needs of more than one percent of the population.

    For similar one percents there have been inquiries and investigations. Time we had some answers as to why we have been so badly let down

Reply
  • To pick up re CAMHS saying children grow out of ASC this is a common misconception, now so established that the Autism Act and the NICE Guidelines for adults, and all the empty promises seem unable to contradict.

    The professionals confuse "cause" in the context of "cause and effect". Their idea of cause is the underlying genetic or developmental CAUSE, and EFFECT is just the symptoms.

    So as teenagers reach maturity and begin to separate into independent adult lives, the bullying and other difficulties with the peer group, that become so ciritical in tenage years for people on the spectrum (even though they may take longer to mature due to delay factors) DISSIPATE. That part of the problem seems to go away.

    Also confidence building, and learning of substitute skills makes a difference. And conditioned changes, like less obvious gaze aversion or subdued reactions to stress make a difference.

    That's also why the psychologists and psychiatrists out there think a bit of CBT and a pill cure the problem - they only do temporarily.

    Because what the professionals (and NAS) don't seem to comprehend is that there is another kind of cause factor: part of the characteristics of ASC are actual real difficulties - sensory differences and sensory overload, the fact that social communication (while it might appear to improve a little) doesn't go away, and the fact that people on the spectrum do fixate on things. These CAUSES continue to cause problems.

    But the psychiatrists and psychologists have totally failed to recognise these CAUSES.

    That's why treatment up to now has focussed on children, and why they think you grow out of it. It's not that we grow out of it, but THEY have signally failed, through gross negligence, to actually prepare strategies for adults.

    That's why transition is still a mess ( oh but they say transition isn't important as you'll grow out of it).

    The Autism Act wont amount to anything until the failure of psychologists and psychiatrists to properly understand this condition is brought centre stage. It is a gross failure of the needs of more than one percent of the population.

    For similar one percents there have been inquiries and investigations. Time we had some answers as to why we have been so badly let down

Children
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