Late middle age insight

Hi.

I'm Gaz, and I'm 53, and I recently made the interesting discovery, by accident, that I fitted the profile of Asperger's syndrome. Which was a shock, but also explained a lot about the last 53 years...

I took the AQ test and scored 42. Now, I'm uncertain of the relevance of this but one of my friends took it as well, and scored 17.

So, armed with this, a week's worth of research and reading these community notes I made an appointment to see my local doctor.

Who told me *You've got a job. You can't have Asperger's. That's Autism. So you don't have it*, gave me 5 printed A4 sheets of information on Asperger's in infants and sent me home.

I'm feeling somewhat agrieved, and in no small measure let down.

Where do I go from here?

GAZ 

Parents
  • Hi Gaz,

    The Autism Act 2009 Guidance requires your GP to refer you for diagnosis. It is really unfortunate, but sadly not uncommon, of matuer adults being denied a diagnosis and your point about retiring etc before getting the help you need.

    Really fascinaing that you met with Rina and good to see it helped.

    As others may also tell you, just because there's a law on Autism doesn't mean you'll find it easy to get the diagnosis unfortunatly.

    You may have to complain or follow the issue with your local NHS Clinical Commissioning Group (CCG - the new NHS body that buy services for people like A&E departments, mental health etc).

     

    I hope this helps you and remember not to give up

     

    urspecial

Reply
  • Hi Gaz,

    The Autism Act 2009 Guidance requires your GP to refer you for diagnosis. It is really unfortunate, but sadly not uncommon, of matuer adults being denied a diagnosis and your point about retiring etc before getting the help you need.

    Really fascinaing that you met with Rina and good to see it helped.

    As others may also tell you, just because there's a law on Autism doesn't mean you'll find it easy to get the diagnosis unfortunatly.

    You may have to complain or follow the issue with your local NHS Clinical Commissioning Group (CCG - the new NHS body that buy services for people like A&E departments, mental health etc).

     

    I hope this helps you and remember not to give up

     

    urspecial

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