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Hello from Wokingham

Quinnypups

My  almost 9 year son was diagnosed on the spectrum in February and we have been told its Aspergers - he still is awaiting ADOS testing - not really sure what it all means if I'm honest, the things that are recommended to help we have been doing naturally anyway but the things we are struggling with are the outbursts (everything is unfair) which seem to be getting more frequent, the anger he feels, his younger brother (5) not really understanding, we haven't told him what the diagnosis is as he will tell everyone that he meets which isn't always appropriate.

We don't know really where to go for support, we don't know what support it is we need - we don't know what happens next or how long we have to wait for the next lot of testing - hopefully it will be soon.

Sometimes its really tough, sometimes he is a total dream, sometimes he's just plain horrid - not really sure what I'm trying to say or what I want to get from this - I'm going to have a browse of the boards to see what I may pick up!

Parents

  • Hi - welcome to the forums.  Just a few thoughts because a bit more info may help.  Has your son got any support at school - a TA?  Life can be tough for autistic children at a mainstream(?) school.  Also what things does he think are unfair?  My son likes things to be the way he wants them to be so I'm wondering if that's why he means.  It can be so difficult sometimes to work out what causes meltdowns.  Sensory issues, various stressors during the day, changes to routine - sometimes all of those things.  And what weight to give to each of those things.

    You have a perfect right to get in touch with those who diagnosed your son + ask them for info, inc. timescales, what's involved in a test etc.  Have you been allocated a social worker?  A good one can be helpful.  

    There's lots of info via the home pg.  There may be a local group in your area, for example.  I think having a look round is a good start.  Don't try to do loads all at once, don't overload yourself.  The posts are also a good way to get info in "chunks".

    It's so difficult when your child's upset + unhappy, especially if you can't work out why.  So lovely when they seem happy.  Cut yourself some slack, you've come to the right place.  We're all here to help each other however we can.

Reply

  • Hi - welcome to the forums.  Just a few thoughts because a bit more info may help.  Has your son got any support at school - a TA?  Life can be tough for autistic children at a mainstream(?) school.  Also what things does he think are unfair?  My son likes things to be the way he wants them to be so I'm wondering if that's why he means.  It can be so difficult sometimes to work out what causes meltdowns.  Sensory issues, various stressors during the day, changes to routine - sometimes all of those things.  And what weight to give to each of those things.

    You have a perfect right to get in touch with those who diagnosed your son + ask them for info, inc. timescales, what's involved in a test etc.  Have you been allocated a social worker?  A good one can be helpful.  

    There's lots of info via the home pg.  There may be a local group in your area, for example.  I think having a look round is a good start.  Don't try to do loads all at once, don't overload yourself.  The posts are also a good way to get info in "chunks".

    It's so difficult when your child's upset + unhappy, especially if you can't work out why.  So lovely when they seem happy.  Cut yourself some slack, you've come to the right place.  We're all here to help each other however we can.

Children
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