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Adult Aspbergers

Aspie Mum

Hi, I just wanted to say hello; I have a 30 year old son who has just been diagnosed with Aspbergers Syndrome. My son is high functioning and struggles with stress and anxiety, particularly in new situations or with his view of what is happening in his life.

I have known for all of the thirty years that my son was different and have tried to support him in any way that I can. I have struggled with everyones perception of how my son presents himself and even family have turned away as they believe that he can control his behaviours. Im sure that many of you understand my feelings of isolation and despair as I have tried to cope with the situation alone.

I would love to hear from anyone in a similar situation or from anyone who has any advice for me.

  • Hi Jon thank you for your comments. Yes, I love my son and am very proud of his achievements so far, I will continue to support him while I am able; I just worry for him when I am no longer able to do this. I dont like labels just because someone does not fit the accepted norm but in some ways, getting the diagnosis opens doors for other support so Im grateful for that. Thanks again.

  • Hi thank you so much for your comments, anything that lets me know that others understand is just wonderful. I know that Autism is very different for every individual but Im sure that we all encounter the same lack of knowledge and understanding from everyone including the people nearest to us. Take care and thank you again.

  • Well done for supporting your son I am sure it has been a major positive factor in his life. Good move on reaching out on this forum. It is pretty frustrating how people just don't understand so I hope you find other people in your position to chat with. There are also lots of people on this forum with Aspergers who might be able to offer insight (for you both).

    :-)

  • Hi Aspie Mum - welcome.  My son's in his 20's + has classic autism.  He was diagnosed a few months before his 3rd birthday + was able to go to a school for autistic children.  I think everyone with autism has stress + anxiety, as do the people who love them and/or care for them.  Autism can be difficult to understand + some people who we'd expect to be supportive can prove to be otherwise.  This is hurtful.  There have been times when I've felt isolated.  Sometimes when a behaviour is difficult, especially when we don't know what's causing it, we can withdraw to avoid that behaviour re-occurring.  Sometimes we can be worn out.  I try to explain autism to others by getting them to relate to how they'd feel.  My son has some issues with certain sounds which really upset him.  So I wd explain to people by asking them to remember a sound they really hated + then asking them to imagine that sound magnified xxx times + then to imagine they couldn't get away from it + on top of that no-one appeared to understand how bad it was for them + behaved insensitively to them.  "How wd you feel??"  You can do the same with skin sensitivities such as clothing that to us may be uncomfortable but to an autistic person wd be painful.

    How are things for you + your son now?  How are you both doing?

    Loads of advice via the posts + home page.  Everyone understands on here.