just new need advice

Hi guys only joined so plz be gentle ,thought i would join in after reading great advice and support from u all .

i am in need of some advice , i have a 12 year old boy 2years ago found out he was dyslexic after we took him private as school didnt want to know .the school he was at in primary we had to fight all the way and it did get tough for all of us .he was referred to autism clinic about 1 and 6mths ago after what seemed a long time they found although he has strong traits it wasnt enough for a diagnose .he was however sent to adhd clinic who did diagnose him ,he has been on tablets for over a year now .when we first took his tablets it took 10 days and gosh do we have a different child in some ways .since starting high school and now getting help, support and on his tablets .he is scoring so well mostly 88% on most tests .he can think better sometimes, not move as much and sometimes  he now makes better discisions for himself .

what is happening now is although he is doing well he still has issues that havnt disappeared with his tablets .still has routine problems if changed lots of melt downs if anxious really cant cope socially keeps head down and u have to ignore him or he goes off on one then he comes round ok  in november he was re-referred back to the autism clinic by his doctor .my fear is when we go back to autism clinic and told no where does that leave us .its as if u get a no and ur forgotton about but it doesnt mean everything goes away we still have to use ways to help him cope .

has anyone else gone through this i just cant understand how u need ways to cope everyday but told no  

Parents
  • thanks to all who wrote back to me it made me feel so welcome and not alone .

    i felt when you get a no  for a diagnose you are left to cope they move on and your left .

    great advice about the diary thx he does cope better in school as it is routine this school is great and support him really well. in primary he was so low he went after assessments into a room to speak private to one  of the ladies as he was so frustrated and very low .he doesnt realise when he is frustrated then it explodes so getting that out helped .

     

Reply
  • thanks to all who wrote back to me it made me feel so welcome and not alone .

    i felt when you get a no  for a diagnose you are left to cope they move on and your left .

    great advice about the diary thx he does cope better in school as it is routine this school is great and support him really well. in primary he was so low he went after assessments into a room to speak private to one  of the ladies as he was so frustrated and very low .he doesnt realise when he is frustrated then it explodes so getting that out helped .

     

Children
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