well here goes ...Hi

Im the mother of a 16 year old who has just been diagnosed with HFA and who has serious mental health isses, aswell .......guess I knew but kept being told NO..

would be great to talk to others in similar situation as sometimes I just stand alone wondering what to do next.

  • Hello again

    That is okay. I am the same as her, just being out makes me tired. I only go out if I have to. I hope you  manage to find her a sutible college. Let me know how you get on, I hope you have a bit more luck than I seem to have, it sounds like we both need a bit of luck. 

    Amy

  • Hi Amy

    thank you for taking time to reply it really helps to hear from someone dealing with the issues as well as other parents and carers .....my daughter was going to collage before her mental health issues took over and then she was just going to do a little part time job for a while and perhaps go to collage this year but none of this achieveable at the moment just functioning each day is enough as going out for a walk and being out in public wears her out due to anxietites .....but thank you the specialist collage idea sounds good and i will pass that on to her ....... her care team have said about doing a prices trust course and keeping busy but she said the same as you it can all be a bit much too soon

    I can see why you have dropped 2 of your As courses as it would appear you have enough to cope with being a carer and trying to support yourself ...I wish you well and hope things get better for you soon ....kep going you sound like a very strong young woman so im sure you will get there in the end as will my daughter

    thank you agian for your help and the info i appriciate it

    jakz

  • This sounds quite similar to me. 

    I was diagnosed just before I was 16, and I am just 17 (my birthday is in January, rubish time of year for a birthday if you ask me) 

    I had some issues with my mental health too, and I have my mum to care for who has mental health problems. Although unlike your daughted I do not have mental health problems so I am told. Now I am diagnosed with autism they say all my unhappyness is from constant change and not being listend to-which I would mostly agree with. And that everyone has bad days of course. 

    Thinking about what to do next, having a full time course and a job sounds hard. I started this year with 4 AS levels but now droped to 2 as it was too much, and I am still unhappy. 
    Have you considerd reducing the amount of things she does? Yes of course having routine and structure is importat but having too many things gives pressurs of always having to be doing things that are hard. 
    Or you could think about a more specialist collage if that would be right for her. I am looking into it for myself as I am struggling where I am now, I also heard about collages that cater for people with Autism. Their is a list here althogh I admit it is really long someone sugested it to me. www.autism.org.uk/.../colleges-for-students-with-autism-or-asperger-syndrome.aspx

    Hope this helps, and keep going. I know it can be hard but it will be even harder if you give up. 
    Amy  

  • Hi ....thank you so much .....

    no my daughter was removed form school just before her gcse's as her mental health deteriorated quite badly and yes I understand the dark places we have been there and at the moment keep bobbing back.......

    she did ok as they graded her exams on her course work and she got what she needed  ...she had a full time course lined up and a part time job but hey there will be others

    so glad to here things heading in the right direction for your son now

    thank you agian.............

    jakz

  • Hi there . My son was diagnosed at 17. We had had lots of issues over the years , but no-one would/could diagnose anything so we just struggles on.

    Our diagnosis came after a period of depression - this apparently is quite a common way to find out.

    How are things with education? Is your daughter/son still at school? Have you told them and asked for help - or have they given up on her?

    We went through a rough patch and my son ended up repeating his lower sixth year. Best decision he ever made - and it was his choice. With the aid of a diagnosis the college are very willing to help and flexible with him. Learning to drive has taken the stress out of the journey to collge. Medication helped the depression - I can't say it was always good, but progress is good and he should be off to uni this autumn. GP is weaning him off the anti depressants.

    We now claim DLA which helps with his runnign costs and that of his car. We also have a support worker and some scheduled activities which help with socialisation , fitness and have helped the depression.

     Just wanted to give you some hope. We've been in some pretty dark places where we didn't know where to turn and what to do next, but we have some good support now and things are on the up.

     

     

  • Hi there . My son was diagnosed at 17. We had had lots of issues over the years , but no-one would/could diagnose anything so we just struggles on.

    Our diagnosis came after a period of depression - this apparently is quite a common way to find out.

    How are things with education? Is your daughter still at school? Have you told them and asked for help - or have they given up on her?

    We went through a rough patch and my son ended up repeating his lower sixth year. Best decision he ever made. With the aid of a diagnosis the college are very willing and flexible with him. Medication helped the depression - I can't say it was always good, but progress is good and he should be off to uni this autumn.

     

    Jusdt wanted to give you some hope. We've been in some pretty dark places where we didn't know where to turn and what to do next, but we have some good support now and things are on the up.