Hi, am new to here and need some guidance, please

Hi everyone,

I have a 21 yr old  son with aspergers, diagosed in his childhood. He also has epilepsy and dyspraxia. Am a single mum, my son does see his dad on a regular basis although he's as useless as a chocolate tea pot.

We're going through some real issues just now. School was obviously always such a struggle and although I fought a constant battle to get him statemented, it never happened, however he did have open access to the learning support team. When he left school,  he tried college but that didn't last long, about 6 weeks.  I managed to get him onto a course for kids with specific needs, Aspergers, depression, some learning support needs but he found even this difficult to deal with and that too didn't last long.

Has had a few short period jobs but nothing has lasted longer than a couple of months. More recently, he decided he wanted to return to college to do catering.  I was so proud of him for going and he'd come home and talk to me about what he'd done and his mood lifted so much. It was so lovely to see.

Over the last few weeks, I've noticed that he's reverting to his usual ways of being withdrawn, isolated, started sleeping about 18 hours a day and staying in his room for very long periods of time again.

I became concerned that he'd not been attending college, even got to asking him what he'd been doing and he'd tell me all about the things he'd cooked, learnt etc however, it was confirmed last week when college actually phoned home to ask why they hadn't seen him since mid November. This all happend around the time his father moved about 100 miles away, so, a big change for my son to deal with.

Am pretty sure he didn't tell me as he didn't want to disappoint me but it escelated out of all control and he didn't then know how to tell me he wasn't going.  Although college know of his problems, my son refused any help/learning support and has always been in total denial of his condition.

He's been at his dad's since I found  out and therefore haven't said anything to him, but, he's home tonight and of course I'm going to have to speak with him. My initial reaction was anger, but of course, I'm not going to shout and scream, this isn't goin to help.  I know he'll try to deny it all, he'll cry, he'll go to his room for a few hours and will probably not speak to me for a day or so.

He has no source of income and, although I do work full time, I do find it really hard financially, especially his train fare to college, he obvioiusly need clothes and toiletires etc and likes to have spending money which I really can't do.

I'm lost for finding help and support for him, if he'll actually accept it. No idea where to turn and having to cope and deal with this on my own.

sorry it's long, I have tried to keep it to a minimum!

Thanks for reading

Bas x

  • bas466 said:
    So, tomorrow, he's agreed that we'll go down to the job centre together tomorrow, he can sign on for now and he's going to ask for extra support in trying to find some kind of work where the employer is sympathetic to his individual needs etc.

    LOL!

    No, seriously, good luck with the 2nd part of that!

    You may want to seriously consider ESA rather than JSA, because he WILL NOT get any extra support on JSA.

  • hi bas -gd to hear that things turned out so positively for both of you. Something to build upon.  bw

  • Thanks Crystal,

    Well, he came back from his dads this evening, didnt jump on his straight away, waited till we were eating (always found thats the best time to talk with him).  I just asked him an open question and let him talk to me.  It all went really ok. I told him I wasn't upset or disappointed with him but wanted him to do what's best for him. He agreed college really wasn't for him but didn't know how to tell me!

    So, tomorrow, he's agreed that we'll go down to the job centre together tomorrow, he can sign on for now and he's going to ask for extra support in trying to find some kind of work where the employer is sympathetic to his individual needs etc.

    He's even agreed he knows he isn't the same as other 21 yr old lads. Kept telling him that I understand how he thinks and feels etc.  It was a nice relaxed talk!

    He even apologised for spending my hard earned cash on his 'train fare' and said he'll repay me, and I'll keep to that too.

    So, all in all, our discussion this evening was really positive :)

    x

  • hi Bas - this must be so difficult for both of you, emotionally + financially.  Does your son getting any money at all, such as dla and/or other benefits?  It sounds like he's depressed.  He tries things but it doesn't work out.  With any of us, if that happened, we'd keep losing our confidence - like a vicious circle.  Is it poss in some way to build his confidence up bit by bit?  I know that won't be easy.  Also, as you say, his dad moving won't have helped - that's a big change.  My son isn't aspergers.  He's in supported living with support workers well trained in autism.  He likes it.  He doesn't go to college but has a varied social life + is encouraged to learn, which he has done + continues to do.  Wd your son accept a support wker who cd be a supportive friend + help him build his confidence up?  This is just a thought.  As you say, if he refuses to accept his diagnosis then probably not.  Wd he access this site to talk with others on the spectrum?  There are many v capable people here who cd maybe help him to accept his diagnosis + show him he doesn't have to be in denial and/or depressed about it.  bw