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I'm new to all of this, any help would be great.

evrensmummy

Hi my son is almost 4 years old and has recently been diagnosed with having Aspergers Syndrome.

I am reading up a great deal re Autism but feel so let down and alone by the health profession and his peadiatrician.

Since my son has been diagnosed I have not recieved any information from the peadiatrician in regards to further assistance, what help to expect and what happens next. I feel like he has been diagnosed and we've kind of been left alone to deal with it.

I've been told I can have my home assessed (as my son has no sense of danger) by social services and that I could be entitled to respite. My son is also frequently refusing to walk when we go out, he'll walk a few steps then cry until he's picked up even chucking himself to the floor. Can i get any help with his physical needs?

 

And also how long does it take for DLA to be rewarded as I am desperate for a blue badge due to his lack of mobility which is having a strain on my back due to having scoliosis (a bent spine).

 

Any help would be greatly appreciated as I feel so alone and depressed at times.

 

Many thanks

Parents

  • Thank u so much for that bit of info. I did have a look at the 'after diagnosis' section but didn't get the exact answers I am seeking. We have no social worker involved however his nursery are in the process of doing his CAF but other than that nothing.

     

    I tried to get through to social services myself and they told me I need to get in touch with the local childrens services which I did and they said that I have to wait for our peadiatrician to refer us first.

     

    My son can physically walk, he just refuses to. He will walk a couple of steps and give up. Even if I leave him and walk off he will not move or will head staright for the main road and has almost been hit by a car a few times to the point where I have had to run in front of him to protect him. Its so draining. Not that everyday is like that, he's just so unpredictable. He does have a normal maclaren buggy but at almost 4 yrs old he is getting big for it. He sometimes drags his feet underneath especially when I refuse to go a way he wants to go or into a shop he likes. Thankfully I drive so this does not happen all day long.

     

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  • Thank u so much for that bit of info. I did have a look at the 'after diagnosis' section but didn't get the exact answers I am seeking. We have no social worker involved however his nursery are in the process of doing his CAF but other than that nothing.

     

    I tried to get through to social services myself and they told me I need to get in touch with the local childrens services which I did and they said that I have to wait for our peadiatrician to refer us first.

     

    My son can physically walk, he just refuses to. He will walk a couple of steps and give up. Even if I leave him and walk off he will not move or will head staright for the main road and has almost been hit by a car a few times to the point where I have had to run in front of him to protect him. Its so draining. Not that everyday is like that, he's just so unpredictable. He does have a normal maclaren buggy but at almost 4 yrs old he is getting big for it. He sometimes drags his feet underneath especially when I refuse to go a way he wants to go or into a shop he likes. Thankfully I drive so this does not happen all day long.

     

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