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I'm new to all of this, any help would be great.

evrensmummy

Hi my son is almost 4 years old and has recently been diagnosed with having Aspergers Syndrome.

I am reading up a great deal re Autism but feel so let down and alone by the health profession and his peadiatrician.

Since my son has been diagnosed I have not recieved any information from the peadiatrician in regards to further assistance, what help to expect and what happens next. I feel like he has been diagnosed and we've kind of been left alone to deal with it.

I've been told I can have my home assessed (as my son has no sense of danger) by social services and that I could be entitled to respite. My son is also frequently refusing to walk when we go out, he'll walk a few steps then cry until he's picked up even chucking himself to the floor. Can i get any help with his physical needs?

 

And also how long does it take for DLA to be rewarded as I am desperate for a blue badge due to his lack of mobility which is having a strain on my back due to having scoliosis (a bent spine).

 

Any help would be greatly appreciated as I feel so alone and depressed at times.

 

Many thanks

Parents

  • hi - I don't know if you've seen the "After Diagnosis" section which you can access via the nas homepage?  There's always the nas helpline if you want to speak to someone about it.  It can be a long wait to see if you've been awarded DLA or not.   Organisations such as CAB, Welfare Rights Depts at local councils, can be helpful.  It's unacceptable that you've been left hanging in mid-air since the diagnosis.  If you haven't already it might be an idea to get back in touch with them to complain etc.  It's important that your child gets a statement of educational needs so he can get the level of support he needs when he starts school.  Have you been allocated a social worker?  If you have then s/he shd be contacting you to see what you need from social services.  Do you know why he's refusing to walk, or does he just prefer his buggy?  I'm presuming from your post that he hasn't got any physical problems with walking.  Others will be along with advice soon.  I hope things get sorted out for you soon.  It must be difficult.  Posters on this site understand + there are many who've felt alone + depressed at times, inc me.  Just chip in with whatever you want to ask.   bw

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  • hi - I don't know if you've seen the "After Diagnosis" section which you can access via the nas homepage?  There's always the nas helpline if you want to speak to someone about it.  It can be a long wait to see if you've been awarded DLA or not.   Organisations such as CAB, Welfare Rights Depts at local councils, can be helpful.  It's unacceptable that you've been left hanging in mid-air since the diagnosis.  If you haven't already it might be an idea to get back in touch with them to complain etc.  It's important that your child gets a statement of educational needs so he can get the level of support he needs when he starts school.  Have you been allocated a social worker?  If you have then s/he shd be contacting you to see what you need from social services.  Do you know why he's refusing to walk, or does he just prefer his buggy?  I'm presuming from your post that he hasn't got any physical problems with walking.  Others will be along with advice soon.  I hope things get sorted out for you soon.  It must be difficult.  Posters on this site understand + there are many who've felt alone + depressed at times, inc me.  Just chip in with whatever you want to ask.   bw

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