26 year old female awaiting assessment

Hi all, I am new to this and with everything Covid 19 related I am feeling fairly lost in the system. I was referred by my GP back in October 2019 and still haven’t heard anything back. My doctors have said the referral is in the system but these things can take time and obviously with all that is going on at the moment I am unlikely to get any answers anytime soon. 

I had a complete breakdown at the start of last year I had come to my breaking point and exploded at work. I was lucky to have a service provided by my company where I was able to access some counselling and that started me on the path to getting an assessment.

Lockdown for me hasn’t so far been a concern, I had just moved jobs at the end of February. I knew the workplace and environment I was in was adding to the way I was feeling and I needed to get out. I had an outburst on one of my last shifts which left me obsessing over it when I got home to the point I had a sever headache for 2 days and then on my last shift I ended up throwing up all over the hallway and I knew then I should take a week off before starting a new job as I wasn’t coping with the change at all. Starting the new job was tough and in my 2 week review I was honest and told my manager how I was feeling and where I had been as this is a job I can see myself in and happily doing (as long as I don’t take on anything else outside of work I seem to manage) after the 3rd week lockdown came and I was then working from home - even better! That took all the stress of travelling and facing the day but still getting to do the job. Then I got furloughed and I am enjoying staying at home doing puzzles, being in the garden and having no stress.

My concern is when the lockdown gets lifted and I have to start to face all those challenges again. My manager seems to be very understanding and easy going but I have made it clear I haven’t been diagnosed and have just said where I seem to struggle/work well with. I have thought this could be a possibility for many years and have always known I didn’t quite fit in no matter how hard I tried. Childhood and Teenage years are always tough and I think it’s been very easy to find all kinds of reasons to blame some of my behaviour over the years but more so since i have entered the workplace it’s been a lot harder for me to cope with. I think I will always have struggles at work and everything that comes with it but it’s when I have tried to have other relationships weather it be a boyfriend or friends then that’s when things really start to get on top of me. 

I am not in crisis and know I am not an urgent case and wondered how long other adults have waited to get an assessment/diagnosis and did it help? I don’t believe it will change anything for me but may help me and others understand why I struggle with certain foods, why I won’t wear certain clothes, how I can’t cope with loud noises, why I struggle with temperature change (on holiday if a tiny cloud comes over the sun I have instant goosebumps all over), why I mumble or repeat myself a lot without meaning too, why I micromanage my day (I’ll plan not just the week away but each day to each hour) I know where I’ve got to be and when and why. I’m hoping with work it will let me take the pressure off myself when it comes to presentations and meeting new partners, how do you tell your manager when you meet someone new you have the sweat trickling down you feeling the heat rise to the top of your head and your heart pumping out of your chest. Now he has an idea I struggle so far he’s not made me meet anyone alone he’s always been there to make that easier. I think he’s seen enough in the 3 weeks to see what I have said for himself and my conversation with him confirmed that thought anyway. I know I am very good at what I do as long as I know what I need to do and I’m able to get on with it. 

I know the panic for most at the moment is the here and now and the troubles they are having during this crisis but I wondered if anyone had any thoughts/ideas for me for when it comes to after the lockdown and the best way to move forward? 

Parents
  • Hello and welcome to the forum. There is no need to worry about long delays in getting an assessment. Even without COVID-19, it could take months to get an appointment. For me, it took five months after a visit to my GP before I was referred.

  • Hi, thanks it’s more the uncertainty of if and when I would be seen. Now I have been told that where I have been referred to has an 18month waiting list for Adult ASD but I do feel much better knowing a rough timeline than to have not heard anything at all. I’m not in a rush as it stands I am lucky I have a very good employer and I am finding lockdown life easier than prelockdown! At least now when things go back to “normal” I have an idea how long I have to wait and if I feel the need to access local services again in the meantime then I can, they left the door ajar for me as currently with the situation I’m in the services they can provide wouldn’t really do much for me but if that changes once life changes again I can go back to them knowing I still have another year before I will be seen. 

Reply
  • Hi, thanks it’s more the uncertainty of if and when I would be seen. Now I have been told that where I have been referred to has an 18month waiting list for Adult ASD but I do feel much better knowing a rough timeline than to have not heard anything at all. I’m not in a rush as it stands I am lucky I have a very good employer and I am finding lockdown life easier than prelockdown! At least now when things go back to “normal” I have an idea how long I have to wait and if I feel the need to access local services again in the meantime then I can, they left the door ajar for me as currently with the situation I’m in the services they can provide wouldn’t really do much for me but if that changes once life changes again I can go back to them knowing I still have another year before I will be seen. 

Children
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