26 year old female awaiting assessment

Hi all, I am new to this and with everything Covid 19 related I am feeling fairly lost in the system. I was referred by my GP back in October 2019 and still haven’t heard anything back. My doctors have said the referral is in the system but these things can take time and obviously with all that is going on at the moment I am unlikely to get any answers anytime soon. 

I had a complete breakdown at the start of last year I had come to my breaking point and exploded at work. I was lucky to have a service provided by my company where I was able to access some counselling and that started me on the path to getting an assessment.

Lockdown for me hasn’t so far been a concern, I had just moved jobs at the end of February. I knew the workplace and environment I was in was adding to the way I was feeling and I needed to get out. I had an outburst on one of my last shifts which left me obsessing over it when I got home to the point I had a sever headache for 2 days and then on my last shift I ended up throwing up all over the hallway and I knew then I should take a week off before starting a new job as I wasn’t coping with the change at all. Starting the new job was tough and in my 2 week review I was honest and told my manager how I was feeling and where I had been as this is a job I can see myself in and happily doing (as long as I don’t take on anything else outside of work I seem to manage) after the 3rd week lockdown came and I was then working from home - even better! That took all the stress of travelling and facing the day but still getting to do the job. Then I got furloughed and I am enjoying staying at home doing puzzles, being in the garden and having no stress.

My concern is when the lockdown gets lifted and I have to start to face all those challenges again. My manager seems to be very understanding and easy going but I have made it clear I haven’t been diagnosed and have just said where I seem to struggle/work well with. I have thought this could be a possibility for many years and have always known I didn’t quite fit in no matter how hard I tried. Childhood and Teenage years are always tough and I think it’s been very easy to find all kinds of reasons to blame some of my behaviour over the years but more so since i have entered the workplace it’s been a lot harder for me to cope with. I think I will always have struggles at work and everything that comes with it but it’s when I have tried to have other relationships weather it be a boyfriend or friends then that’s when things really start to get on top of me. 

I am not in crisis and know I am not an urgent case and wondered how long other adults have waited to get an assessment/diagnosis and did it help? I don’t believe it will change anything for me but may help me and others understand why I struggle with certain foods, why I won’t wear certain clothes, how I can’t cope with loud noises, why I struggle with temperature change (on holiday if a tiny cloud comes over the sun I have instant goosebumps all over), why I mumble or repeat myself a lot without meaning too, why I micromanage my day (I’ll plan not just the week away but each day to each hour) I know where I’ve got to be and when and why. I’m hoping with work it will let me take the pressure off myself when it comes to presentations and meeting new partners, how do you tell your manager when you meet someone new you have the sweat trickling down you feeling the heat rise to the top of your head and your heart pumping out of your chest. Now he has an idea I struggle so far he’s not made me meet anyone alone he’s always been there to make that easier. I think he’s seen enough in the 3 weeks to see what I have said for himself and my conversation with him confirmed that thought anyway. I know I am very good at what I do as long as I know what I need to do and I’m able to get on with it. 

I know the panic for most at the moment is the here and now and the troubles they are having during this crisis but I wondered if anyone had any thoughts/ideas for me for when it comes to after the lockdown and the best way to move forward? 

Parents
  • Hello NA S66894

    Further on from Anthony's reply 

    You may like to look at our information about autism spectrum disorders:
    http://www.autism.org.uk/about/what-is.aspx

     

    If you were interested in finding out if you are on the autism spectrum, you would need to have a formal diagnostic assessment. You may find it useful to have a look at the following link for further information about diagnosis and the benefits of getting one:

    http://www.autism.org.uk/about/diagnosis.aspx 

     

    Furthermore, it is important the professional you see has experience of autism spectrum disorders. You can find details of diagnostic services on our Autism Services Directory in the Assessment and diagnosis section: http://www.autism.org.uk/directory.aspx

     

    You may like to have a look at the following page which includes personal accounts, which may help: http://www.autism.org.uk/about/adult-life/stories.aspx

     

    It might also be useful to pass on information about autism to health professionals when seeking a diagnosis. The following page includes information for a range of health professionals:
    https://www.autism.org.uk/about/diagnosis/professionals-involved.aspx

    If you have further questions, you may like to contact our Autism Helpline team. They can provide you with information and advice about getting a diagnosis. You can call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm).Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor

    I hope you find some of this useful.

    Best Wishes

    Lorraine Mod

Reply
  • Hello NA S66894

    Further on from Anthony's reply 

    You may like to look at our information about autism spectrum disorders:
    http://www.autism.org.uk/about/what-is.aspx

     

    If you were interested in finding out if you are on the autism spectrum, you would need to have a formal diagnostic assessment. You may find it useful to have a look at the following link for further information about diagnosis and the benefits of getting one:

    http://www.autism.org.uk/about/diagnosis.aspx 

     

    Furthermore, it is important the professional you see has experience of autism spectrum disorders. You can find details of diagnostic services on our Autism Services Directory in the Assessment and diagnosis section: http://www.autism.org.uk/directory.aspx

     

    You may like to have a look at the following page which includes personal accounts, which may help: http://www.autism.org.uk/about/adult-life/stories.aspx

     

    It might also be useful to pass on information about autism to health professionals when seeking a diagnosis. The following page includes information for a range of health professionals:
    https://www.autism.org.uk/about/diagnosis/professionals-involved.aspx

    If you have further questions, you may like to contact our Autism Helpline team. They can provide you with information and advice about getting a diagnosis. You can call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm).Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor

    I hope you find some of this useful.

    Best Wishes

    Lorraine Mod

Children
  • Thankyou this was very helpful! I called the helpline team who helped me get the information I needed to find out where I am in the system.

    My GP had told me they sent another referral and gave me the information of where my referral had gone but they hadn’t got anything back yet for either. I was then able to contact them directly and after sending an initial email with all my information and what I was looking for I had waited a week to call them for a response. They were also great but had said they couldn’t find my initial referral in the system all they had on file was the email I had sent them but they have sent a full referral form to my GP which they have said they received yesterday and both places have highlighted the initial date of referral as October so I haven’t wasted the last 6months. 

    I have been informed they have a 18month waiting list for Adult ASD referrals but now that I have an idea that I have up to another year to wait I have something to work with and if need be I will access local services again and let them know where I stand.