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Hi, I'm new

kirstylu

Hi everyone, I just found your site, my 5 year old DS is on the brink of being diagnosed on the spectrum somewhere. He's had 3 assessments in school with the educational psychologist, the latest yesterday he spoke to my son's teacher and say's he feels he's definitely autistic, on the spectrum somewhere, and wants him seen as soon after xmas as possible by the autism team. Waiting on a phone call/letter as he apparently needs our permission to refer him on. 

I can't help but feel guilty, I know really I shouldn't, but we can't help our feelings hey. 

Anyway, hi :D 

Parents

  • hi again - yes, over time we all get used to life being different - it becomes a different kind of "normal" as you put it.  With me + my son, getting the diagnosis, then the statement, meant he went to a school for children with autism.  At the time I didn't realise that that didn't happen or didn't happen without a battle for some other families.  That made a big + positive difference to both of us.  V small classes, speech therapy, teachers who understood.   We also applied for and got dla which was helpful.  He also became entitled to an amount of respite care which he enjoyed + which gave me a break.  When he left school he wanted to go into supported living.  Having the diagnosis made him eligible.  To cut a v long story short ultimately he was able to get autism specific carers + has also been able to move to an environment more suited to his needs.   So all I'm saying is this is what helped us in our particular situation.   

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  • hi again - yes, over time we all get used to life being different - it becomes a different kind of "normal" as you put it.  With me + my son, getting the diagnosis, then the statement, meant he went to a school for children with autism.  At the time I didn't realise that that didn't happen or didn't happen without a battle for some other families.  That made a big + positive difference to both of us.  V small classes, speech therapy, teachers who understood.   We also applied for and got dla which was helpful.  He also became entitled to an amount of respite care which he enjoyed + which gave me a break.  When he left school he wanted to go into supported living.  Having the diagnosis made him eligible.  To cut a v long story short ultimately he was able to get autism specific carers + has also been able to move to an environment more suited to his needs.   So all I'm saying is this is what helped us in our particular situation.   

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