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10 year old nephew recently diagnosed

NAS65455
  1. Today after 10 years my nephew finally got an autism diagnosis. Feels like a sad day still even though we have been completely convinced he is on the spectrum since before he could even walk. After all the appointments and assessments and reports etc it was just told to us in a 20 minute appointment but we have no idea what to do with this diagnosis. The lady who done his assessment as helpful as she was at the beginning her only suggestion today was this website and apply for pip. We are way more concerned about his safety as he runs off at the first sign of being uncomfortable. This has led to him running from school onto roads etc and the school don't seem to have much experience of autism either and where we turn to next for advice on what's best to support him. The school are adamant that moving him to a specialised school will not be what is best for him as he is doing so well academically and puts even me who has 2 diplomas to shame when it comes to his intelligence and remarkable memory. What is the best way to get support in dealing with his emotions and sensory issues whilst away from home? He does have ear defenders which he uses alot at school but those won't help when another child breaks the rules of a game and he just can't cope with it.

  • I am assuming The young boy is a little over 10 years. You are rightly concerned for his safety when out and about. I am writing as if you are his Unpaid Parent Carer whether you are or not.

    1, See Your GP and inform him of who has said what, and ask for some written authoritative references as to his diagnosis. You may need to submit a copy of this diagnosis to any body seeking proof, for whatever reason you need. Also as you have said it is suggested that he needs to go to a special School where he will be assumed to be more safe and supervised. Other pupils there will be also having communication problems and he most probably be among other non communicating children, ie Not Games as you know it.  

    2, Start to keep boring notes as to the meetings you have with people. - Dates Times and Names of who said what and why.

    3, Start to keep a diary of the Boy's behaviors for your records, Examples Escaping away unsupervised to danger, Dropping down in apparent Tantrums in supermarkets,or any where else such as walking with you. Write down past events if you can recall them as best you can. 

    4, When taking him out record if his safety needs be that you have to be so near to him his is under your complete direction. Ie you can grab him, if not on reins, with you directing him, perhaps by even voice and and a gentle hand. You will need to be in control to get Mobility allowance and a Blue Badge. By definition it was originally(and still is) for a Physical Disability.  I had to establish this 25 years ago at a Medical Appeals Tribunal with my son running round the Tribunal Walls like Billy Whizz. It may be that When on a bus You will have to remove him physically off the buss when other Children get on. 

    5, A special school will need funding by Your Local Authority.

    6, Visit your local Citizens Advice Office with a view to get your Boy specialised Social Services Help from specialised Solicitors. under Legal Aid.                  He will need a Statement of Educational Needs

    7, Make sure that you Child has little in the bank as more than a £500  may prevent legal Aid. Check the Current Rates. 

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