Struggling to get doctors to realise my seriousness

Hi all, my daughter will be 3 in April and for a while now we’ve been thinking she may be autistic. She’s unable to speak, she hardly listens to us, hates been around other children and when she is, she doesn’t socialise with them including her sibling. We’ve also noticed that she stims quite regularly and does what we call her ‘excited dance’. There’s loads of other small things that draws us towards autism, but don’t want to list them all.  She’s had several hearing tests which have all come back fine too. We went to see the doctor today to talk about our concerns and he basically said he doesn’t deal with autism and gave us a number to call. So I called them this afternoon and they said there’s nothing they can do unless she’s referred to them by her school or a speech and language therapist. She’s too young for school and we’ve been on the waiting list for her to have speech therapy since October last year. 
Does anyone have any advice on what we can do now? Feel like we’re stuck and just want to get to the bottom off it all. Thanks. 

Parents
  • My Autistic son was born a long time ago - Yesterday being his 37th Birthday. I suggest you must start with your GP and request that you get referred to a Pediatric Specialist. I would have expected that this would have happened as soon as you asked your GP for help. Your concern was the same as ours - Lack of Language at 3 yrs as well as bizarre behavior, We had 5 older children so we had not been too worried about him until then. After all Einstein was reported not to speak until 3.5 years. Or main concern had been feeding him, as he had been rejecting food since birth unless it had no texture and did not exceed 5 teaspoons. But we had been slowly been taken over by his problems and were at a low point, His eventual diagnosis, by a specialist Pediatric Neurologist at  a Specialist a Children's Hospital Came as a relief, because we felt we could get back to normal. He started at a specialist school at 3.5 years, some children were Resendential, but we had him taxied their daily.  We are still His Unpaid Parent Carers of last Resort because of Local Authority failure Time and time again that continues deliberately to this day. I suggest You seek an appointment Firstly with your GP, Secondly with your local Citizen Advice Bureau with a view to be directed to a specialist Solicitor to advise you further. Professionals will not really want to commit themselves until a child is about 3 years to 3.5 years, even though it may be obvious a child is autistic earlier. My son statemented to need 24 x 7 care which is at one end of the autistric spectrum, others who contribute on this website are also on this same spectrum of disabilities , But my son has none or little comprehension of Language, Its Structure and use to communicate with others. Good luck with your quest. 

Reply
  • My Autistic son was born a long time ago - Yesterday being his 37th Birthday. I suggest you must start with your GP and request that you get referred to a Pediatric Specialist. I would have expected that this would have happened as soon as you asked your GP for help. Your concern was the same as ours - Lack of Language at 3 yrs as well as bizarre behavior, We had 5 older children so we had not been too worried about him until then. After all Einstein was reported not to speak until 3.5 years. Or main concern had been feeding him, as he had been rejecting food since birth unless it had no texture and did not exceed 5 teaspoons. But we had been slowly been taken over by his problems and were at a low point, His eventual diagnosis, by a specialist Pediatric Neurologist at  a Specialist a Children's Hospital Came as a relief, because we felt we could get back to normal. He started at a specialist school at 3.5 years, some children were Resendential, but we had him taxied their daily.  We are still His Unpaid Parent Carers of last Resort because of Local Authority failure Time and time again that continues deliberately to this day. I suggest You seek an appointment Firstly with your GP, Secondly with your local Citizen Advice Bureau with a view to be directed to a specialist Solicitor to advise you further. Professionals will not really want to commit themselves until a child is about 3 years to 3.5 years, even though it may be obvious a child is autistic earlier. My son statemented to need 24 x 7 care which is at one end of the autistric spectrum, others who contribute on this website are also on this same spectrum of disabilities , But my son has none or little comprehension of Language, Its Structure and use to communicate with others. Good luck with your quest. 

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