34, diagnosed yesterday, hello!

Hello,

I'm generally nervous about posting on forums and replying so I thought I'd throw myself in.

13 years ago, whilst having an awful time studying to become a teacher on a PGCE course, I read about ASD and realised that I had it. I took lots of online tests and was shocked to score so highly but never felt able to join in with the autistic community as I wasn't diagnosed and was too scared to seek a diagnosis.

Recently, we have been in a better position financially so my husband agreed we could invest in a private assessment (waiting lists are 2 years here). I was incredibly nervous beforehand but the two psychologists were lovely. The assessment was yesterday. It was exhausting so I've been in bed all day today, but finally having a diagnosis feels very good.

I have told a few people but I'm feeling anxious about sharing my diagnosis with some people as I fear a negative reaction. Either "don't be ridiculous" or "that's why you're such a ****". I'd be really interested to hear how people have shared their diagnosis and what the reactions were.

The worst I have had so far was "It's a good job you weren't diagnosed as a child as you would have been written off as disabled". My twitter friends on the other hand have either said "I hope they can help you now" (as in, you have a problem that must be fixed") or "Congratulations, now you can be you".

Thanks for reading 

Parents
  • People can suck. A lot of people's experience of autism is characters from tv or films. They don't get it. They don't understand it or they try and tell you that everyone is a bit autistic , "everyone does that" , "yes my anxiety was high today too". It can really make you cross. It's so hard to negotiate around Neuro typical people as they just don't get it. 

  • Definitely! I heard just this week that a staff member at my daughter's school said "we're all on the spectrum". Trying to get across the level of anxiety I experience is just impossible so often I get cut out of people's lives because they don't believe it and assume I just don't want to spend time with them.

    I'm lucky to have a husband and daughter and a few friends so it makes it easier to let go of those people who can't or won't understand.

Reply
  • Definitely! I heard just this week that a staff member at my daughter's school said "we're all on the spectrum". Trying to get across the level of anxiety I experience is just impossible so often I get cut out of people's lives because they don't believe it and assume I just don't want to spend time with them.

    I'm lucky to have a husband and daughter and a few friends so it makes it easier to let go of those people who can't or won't understand.

Children
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