Hi to everyone.
After struggling through life for 45 years, I have just been diagnosed with ASD. I have struggled with many things as long as I can remember, and knew I had issues but did not know why. Over the past 5 years I have really being trying hard to better my mental state and physical health, but really could not get my head around many issues.
About 3 years ago I watched a documentary on one of my favourite musicians, who mentioned in passing that he had Asperger's and a couple of the issues he has. This rang a bell for me, so when I saw another documentary a few months later on Asperger's I watched it. Everything they said was describing me. I did think that I managed things quite well, but then things were very hard and exhausting, so I did a bit more online research, did some online tests which said this could be my issue, concluded that I needed to pursue this further and work out whether I did or did not have Asperger's.
The rules say we shouldn't criticise organisations by name on here, so lets just say I went to a local health provision organisation and said that I thought I might have Asperger's and wanted a diagnosis assessment. I won't go into the detail as this post would be about 6 pages long, but lets just summarise that after 2 and half years of back and forth, raising an official complaint, going around in circles and seeing different people, the conclusion was that I would not get an assessment due to not being obviously positively Asperger's enough to warrant them spending their limited time on me.
The day after the final nail in that coffin I decided to spend the money and get a private assessment. I called a company who were very friendly, helpful, understanding and open, and was told I should get an assessment within 8 to 10 weeks, but might get a sooner cancelation appointment if one pops up. Three days later I get a call and they have a slot a week later. So after 11 days I have had my assessment and they concluded on the day without any doubts and I am now diagnosed with Autism Spectrum Disorder which they say would have previously been classed as Asperger's.
I am still getting my head around things but already feel massive relief, both for no longer having to battle with the unhelpful organisation and more importantly understanding why I am how I am. It is also great that you are all here and I am not alone anymore.
this is fantastic, to finally get some recognition of what you've suffered with and to finally have a 'name' for it, it gives some kind of meaning and justification to your behaviours. Really well done for pushing and pursuing what was right for you. Some organisations and professionals, do not understand the complexities of and and the variety of ways in which people present in this way. if you have a hunch, you must go with it, so well done, a relief must be amazing. Im awaiting my assessment.
Hi, I to was diagnosed at 45, only difference was I knew for years it was the case, it was only when my son (also on the spectrum) kept going on, that I sort a formal diagnosis.
I was turned down the first time my GP referred me, but fortunately for my he pushed for it. I haven't really got my head around it either yet, it was 10 months ago, but I'm getting there.
You should be proud of yourself for finally doing it. It takes courage and strength to face something as difficult as what this can be, the realisation you're on the asd spectrum.
Hopefully it's onwards and upwards in terms of fitting the puzzle pieces together. I'm sure you can probably see reasons as to why you may behave the way you do.
hello and welcome! I was diagnosed last year, mid 40s
Thanks for the kind comments. I do think it is going to take some time to both take it all in and to move forward. Each day I am discovering new things that I do that are clearly linked but I have just got so used to them over the years that I didn't even notice them anymore.
The relief is definitely a big thing. Last night I got about 2 hours sleep, but for the first time in years, it wasn't anxiety about my issues or day to day issues, but was just processing how I am, almost in an excited way as I am when not sleeping thinking about solving techy problems..
I think things are going to be better going forward, just because I understand the why bit now.
Hi, I'm really glad that you finally got your diagnosis. Hopefully you can find support and friendship through talking with people on this forum.
Hello and welcome to the community!