Autism and learning difficulties

Hi all,

I would love to have other parents to chat to who have children with learning and behavioural difficulties. My daughter is nearly 5 doesn't talk, although sometise makes appropriate sounds that sound like words. She has global developmental delay and only learnt to walk a year ago, she can't build a tower of bricks yet but has started to try and use a spoon and can do small marks with a pen. Her behaviour is very challenging and she punches herself in the head and attacks us by pinching, biting or headbutting us on a daily basis, very often we don't know why. She also pulls her own hair out and has given herself bald patches before.

       She understands what you say really well and can follow instruction but quite often resists. She doesn't sign very much because she is behind on her motor skills but can do the sign for more, eat , sleep and where. Thankfully she sleeps and eats well! She doesn't have a diagnosis of autism yet but the paediatritianas said when she was 1yr that she showed signs of it and I feel, although we get good eye contact that he was right. Her anxiety goes through the roof very easily and she copes better in a familiar routine.

       I don't know anyone else with a child who has autism and developmental delay and am finding daily life reallychallenging, even supposedlysimple things like dressing her, sitting in the garden with her (eats puts everything in her mouth), in fact at the moment just sitting in the living room is difficult as you get attackeduntil you leave the room!

     Needing an understanding ear!

Parents
  • My daughter goes toespecial school because her needs mean she would find mainstream completely overwhelming stressful and scary, and she has gone since she was 3. We were very lucky in getting astatement early, but I think it was because her behaviour wasextreme and people could see she wouldn't have coped. It was traumatic enough getting her used to thespecial school! Are school working with you, to help your child adjust?</p><p>With my daughter, It is starting to get more awkward as she has got older with her behaviour in public, with people getting upset (and rightly so) with her punching herself so hard in the face. She does it when she thinks we should leave or if it's somewhere she doesn't wanna be or if a noise or somthing scares her. We put our hand in the way to block her but she pulls the hand away or bites and pinches our arms with great force. Sometimes though, days out can be really good and it's difficult to know when to go out and when not to bother, and each time it's really bad it makes u more reluctant to try again because it's so energy zapping! You try and see the pattern and work out what went wrong and how to do things different but I can't mind read and she can't tell us! I think she is getting more aware of routine and more rigid in hiw she thinks things should be asthe has got older and more able. Do you use pecs with your daughter? I'm starting to use them more now as I think now she might be able to understand them, and hopefully that will help, just involoves me being more organised than I naturally am!

Reply
  • My daughter goes toespecial school because her needs mean she would find mainstream completely overwhelming stressful and scary, and she has gone since she was 3. We were very lucky in getting astatement early, but I think it was because her behaviour wasextreme and people could see she wouldn't have coped. It was traumatic enough getting her used to thespecial school! Are school working with you, to help your child adjust?</p><p>With my daughter, It is starting to get more awkward as she has got older with her behaviour in public, with people getting upset (and rightly so) with her punching herself so hard in the face. She does it when she thinks we should leave or if it's somewhere she doesn't wanna be or if a noise or somthing scares her. We put our hand in the way to block her but she pulls the hand away or bites and pinches our arms with great force. Sometimes though, days out can be really good and it's difficult to know when to go out and when not to bother, and each time it's really bad it makes u more reluctant to try again because it's so energy zapping! You try and see the pattern and work out what went wrong and how to do things different but I can't mind read and she can't tell us! I think she is getting more aware of routine and more rigid in hiw she thinks things should be asthe has got older and more able. Do you use pecs with your daughter? I'm starting to use them more now as I think now she might be able to understand them, and hopefully that will help, just involoves me being more organised than I naturally am!

Children
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