Hi all, I'm kinda at a cross road. My son is nearly 4 and starts reception in September. I've known for a long time that my sons behaviour is different from other children his age. His always been very advanced but his emotional and social development is not progressing at the same pace. His social interactions can be very aggressive and controlling towards both adults and children. He is awaiting a CDAC assessment but I'm not quite sure what this is and what it covers? I've been doing research and I think he may be HFA or aspergic, is there anyone else who's going through or has been through this already? Any advice would be brilliant as I really don't no what else to do right now.
Hello, CDAC, Communication Disorders Assessment Clinic is generally where the ADOS psychological tests are carried out. ADOS stands for, Autistic Diagnostic Observational Schedule which is used to determine if a child is autistic.
As there is usually quite a long waiting list for CDAC referrals, you should be able to access support and expert advice before the appointment. Your local authority should have a stated policy on this.
I would advise you to ask your GP or whoever made his referral to CDAC for more information. The NAS helpline can be found here.
If you have any further questions, just ask. All the best, Graham.
Hi Graham, they have only refereed him for a CDAC, which is still going to be another 18 months, weve waited a year already. Will they do the ADOS with the CDAC or do we have to go on a waiting list for this? Also do you no what sort of tests are carried out to reach a diagnosis? He got referred by the pediatrician but they are so difficult to get hold off and never offer any support, I seem to be having to chase everyone and get my own help and support. I've tried getting other agencies involved but his pre-school isn't very supportive and always decline the other agencies by saying his development is fine or above normal so they have no concerns, they are only going by development and not his behavioural traits or the extreme meltdowns/overload he has, I don't no what else to try, sorry for all the questions but weve been going through this for so long now it just seems never ending
Hello Marley-Jane, don’t be sorry for asking questions. You are trying to get the appropriate help for your little boy, and you’re being badly let down by those who are paid to help, and by an underfunded system.
What county are you in? We may be able to find a statement of policy and the person responsible for its implementation.
Normally an ADOS diagnosis for autism is carried out during a CDAC appointment. You can read a bit more about it here: http://www.thebutterflyroom.org/blog/exploring-parental-experiences-of-the-communication-disorders-assessment-clinic
As you rightly point out, psychological and behavioural development are just as important - if not more - as academic development. It sounds like ignorance or laziness (or both) are preventing his pre-school address your concerns.
There is a blog written by a mother of an autistic boy which is about early childhood autism. http://flappinessis.com
If there are any local autism groups near you, I would contact them. It’s always good to hear from people who have been, or are going, through the same experience as you.
Hi Graham, I am living in Hertfordshire county. That's good to no they do both assessments at the same time, I was worried I would have to wait even longer for some answers. His a very clever child, his only 3 and name over 30 dinosaurs and notices the different features in everyone. He notices the most smallest details in everything around him. His behaviour is what concerns me the most, he functions on minimal sleep and is very aggressive towards other children and adults. He doesn't seem to grasp playing nicely and taking turns, if something doesn't go his way he will disrupt the activity or start hitting, scratching ect. His meltdowns can be very extreme he will role around on the floor kicking throwing heads butting and very often gets removed from the room to calm down. They did say when he comes out of a meltdown he likes to draw pictures. I am hoping once his in reception they may take it more seriously and actually want to help me with progressing forward
He also hasn't been refered to the special needs health visiting team after he got referred for a CDAC and this was August last year
The link I posted is about a research project researching the effects the Autism diagnosis process had on parents in East and North Hertfordshire. It would seem they haven’t improved the diagnosis process despite the report.
He sounds like a lovely, very intelligent little boy who just needs the appropriate assistance. I will see if I can find out to whom you may request assistance from, and get back to you later today.
Hello Marley-Jane, The following links should help you find out how you access help:
If you need any help composing an email, let me know. Graham.