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daugter only just diagnosed

kelzbelz

hi everyone,

i am new to all this as my daughter (aged 9) was only diagnosed with asd 2 weeks ago. although this was not a complete shock it is still sinking in for my husband and I. What a fight it is to get this far! I feel like we have only just begun our journey as a family and would apreciate any advice you have to give. we also have a daughter of 8 who is nt(only just found out what that means) and we are to expect our 3rd child in december. these are very stressfull times for us and if im honest i really dont know where to go from here or what to expect next. It breaks our hearts to see our 8 yr old growing up and spending time with friends knowing that our other daughter struggles so much but at the same time we are happy. Is it normal to feel this way? Also guilt ,and the feeling of being so alone and then feeling selfish for worrying about my own feelings not knowing how our daughter must feel. I hope that reading some of the discussions on here will help a little with all this

Parents

  • Hi kelzbelz, I certainly can identify with how you are feeling.  My four year old son was disgnosed with ASD three weeks ago and we are still trying to get our heads around it.  This is even though we knew in our hearts before his assessment concluded that he had autism.  I think parents are wrung out even before they get their diagnosis as the process is a very long and difficult one with so much red tape to get through.  I realise they need to be sure before a diagnosis can be made but I feel a lot of our concerns were explained away whereas we knew there was more to it.  I feel frustrated at this as they say early intervention is key.  This is all stress even before you are told they have autism and the implications of this.  My son has a two year old brother and I feel upset on behalf of my four year old that he cannot play and interact with him.  He is also non verbal.  This is the first forum I have signed up to and also my first comment but its a comfort to know I am not alone!  I have now accepted things - my beautiful son is no different to the child he was three weeks ago and I now see his diagnosis as a positive.  If he did not get it we would still not know what was wrong and now we can get him the help that he needs.  Hopefully this is the same case with your daughter, as you now know, you can get her the help she needs.  Please don't feel guilty for feeling the way you do.  One minute I am fine and the next I'm in tears but I'm telling myself its completely normal - I also don't have pregnancy hormones to cope with!  We may have just started the fight for our children but we will get there - at least I know other people are going through the same thing x

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  • Hi kelzbelz, I certainly can identify with how you are feeling.  My four year old son was disgnosed with ASD three weeks ago and we are still trying to get our heads around it.  This is even though we knew in our hearts before his assessment concluded that he had autism.  I think parents are wrung out even before they get their diagnosis as the process is a very long and difficult one with so much red tape to get through.  I realise they need to be sure before a diagnosis can be made but I feel a lot of our concerns were explained away whereas we knew there was more to it.  I feel frustrated at this as they say early intervention is key.  This is all stress even before you are told they have autism and the implications of this.  My son has a two year old brother and I feel upset on behalf of my four year old that he cannot play and interact with him.  He is also non verbal.  This is the first forum I have signed up to and also my first comment but its a comfort to know I am not alone!  I have now accepted things - my beautiful son is no different to the child he was three weeks ago and I now see his diagnosis as a positive.  If he did not get it we would still not know what was wrong and now we can get him the help that he needs.  Hopefully this is the same case with your daughter, as you now know, you can get her the help she needs.  Please don't feel guilty for feeling the way you do.  One minute I am fine and the next I'm in tears but I'm telling myself its completely normal - I also don't have pregnancy hormones to cope with!  We may have just started the fight for our children but we will get there - at least I know other people are going through the same thing x

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