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daugter only just diagnosed

kelzbelz

hi everyone,

i am new to all this as my daughter (aged 9) was only diagnosed with asd 2 weeks ago. although this was not a complete shock it is still sinking in for my husband and I. What a fight it is to get this far! I feel like we have only just begun our journey as a family and would apreciate any advice you have to give. we also have a daughter of 8 who is nt(only just found out what that means) and we are to expect our 3rd child in december. these are very stressfull times for us and if im honest i really dont know where to go from here or what to expect next. It breaks our hearts to see our 8 yr old growing up and spending time with friends knowing that our other daughter struggles so much but at the same time we are happy. Is it normal to feel this way? Also guilt ,and the feeling of being so alone and then feeling selfish for worrying about my own feelings not knowing how our daughter must feel. I hope that reading some of the discussions on here will help a little with all this

Parents

  • Hi squirrel,

     

    Feeling for you too. Can yu join a local autistc support group. I so get what you mean about burdening friends, but you need somewhere to offload. We can't do it all singlehanded. What about a befreinder  either for your 10 year old , or to support the younger one.

    I understand the sadness you feel that the siblings just have to get on with it as the other takes all your time. Try and pull in as much support as you can, and make the best of the evenings with your husband. Its so easy just to spend the time on your own after a busy day , but if you can keep a relationship going it will help. I  am still in a relationship, but I wish I had worked harder. I feel very alone even after 20+ years of my marriage - i spend far more time with and talking to my aspie son.

    Wish i had done it differently.

Reply

  • Hi squirrel,

     

    Feeling for you too. Can yu join a local autistc support group. I so get what you mean about burdening friends, but you need somewhere to offload. We can't do it all singlehanded. What about a befreinder  either for your 10 year old , or to support the younger one.

    I understand the sadness you feel that the siblings just have to get on with it as the other takes all your time. Try and pull in as much support as you can, and make the best of the evenings with your husband. Its so easy just to spend the time on your own after a busy day , but if you can keep a relationship going it will help. I  am still in a relationship, but I wish I had worked harder. I feel very alone even after 20+ years of my marriage - i spend far more time with and talking to my aspie son.

    Wish i had done it differently.

Children
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