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daugter only just diagnosed

kelzbelz

hi everyone,

i am new to all this as my daughter (aged 9) was only diagnosed with asd 2 weeks ago. although this was not a complete shock it is still sinking in for my husband and I. What a fight it is to get this far! I feel like we have only just begun our journey as a family and would apreciate any advice you have to give. we also have a daughter of 8 who is nt(only just found out what that means) and we are to expect our 3rd child in december. these are very stressfull times for us and if im honest i really dont know where to go from here or what to expect next. It breaks our hearts to see our 8 yr old growing up and spending time with friends knowing that our other daughter struggles so much but at the same time we are happy. Is it normal to feel this way? Also guilt ,and the feeling of being so alone and then feeling selfish for worrying about my own feelings not knowing how our daughter must feel. I hope that reading some of the discussions on here will help a little with all this

Parents

  • Dear Crystal12,

    Thank you for your kind reply and words of advice, which I have re-read a few times to make them sink in.  I really appreciate hearing of your experiences and getting your advice and will certainly try to do as you suggest.  It is a very hard time and the feedback of others who have been through this war is invalauble, it makes one feel less alone, although it is a stark truth that strangers have more connection with me now than the people I have surrounded myself with for years.  I am shocked and hurt by some friends and family responses to the diagnosis - the worst being silence or glibness, but perhaps when something so big happens, your life changes and parts of your 'old life' fall away.

    Thank you again for your words on seeing my son as an individual, seeing how the ASD affects him and how I can be there for him to help, and on schooling - I will try my hardest to give him all the chances he deserves.

Reply

  • Dear Crystal12,

    Thank you for your kind reply and words of advice, which I have re-read a few times to make them sink in.  I really appreciate hearing of your experiences and getting your advice and will certainly try to do as you suggest.  It is a very hard time and the feedback of others who have been through this war is invalauble, it makes one feel less alone, although it is a stark truth that strangers have more connection with me now than the people I have surrounded myself with for years.  I am shocked and hurt by some friends and family responses to the diagnosis - the worst being silence or glibness, but perhaps when something so big happens, your life changes and parts of your 'old life' fall away.

    Thank you again for your words on seeing my son as an individual, seeing how the ASD affects him and how I can be there for him to help, and on schooling - I will try my hardest to give him all the chances he deserves.

Children
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