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daugter only just diagnosed

kelzbelz

hi everyone,

i am new to all this as my daughter (aged 9) was only diagnosed with asd 2 weeks ago. although this was not a complete shock it is still sinking in for my husband and I. What a fight it is to get this far! I feel like we have only just begun our journey as a family and would apreciate any advice you have to give. we also have a daughter of 8 who is nt(only just found out what that means) and we are to expect our 3rd child in december. these are very stressfull times for us and if im honest i really dont know where to go from here or what to expect next. It breaks our hearts to see our 8 yr old growing up and spending time with friends knowing that our other daughter struggles so much but at the same time we are happy. Is it normal to feel this way? Also guilt ,and the feeling of being so alone and then feeling selfish for worrying about my own feelings not knowing how our daughter must feel. I hope that reading some of the discussions on here will help a little with all this

Parents

  • Hi, I'm sorry, I don't know the anacronyms-I'll have to find help or brush up. My son, who will be 4 in Nov, has just been diagnosed and I just feel grief-stricken.  I am either sad or furious, I feel resentful of people we know, angry at God, and pretty much alone.  My son is the most adorable little baggage, but I feel such loss, loss of my dreams for him and us, wondering if he will ever communicate with us, if he will ever be able to participate in childhood rites of passage like Christmas, building a den with friends, or even not needing nappies.  Mostly I am terribly sad that where I once saw him, I now see ASD.  Does anyone else feel like this?  When will the pain become acceptance?  I feel guilty for seeing symptoms and not my son.

    I am looking at various interventions (does everyone do this?) and wonder if anyone has any experience of DIRFloortime or Son-Rise?

    Anyhow, you sound like a wonderful community, I wish you much love and happiness with the special children and adults in your lives.

Reply

  • Hi, I'm sorry, I don't know the anacronyms-I'll have to find help or brush up. My son, who will be 4 in Nov, has just been diagnosed and I just feel grief-stricken.  I am either sad or furious, I feel resentful of people we know, angry at God, and pretty much alone.  My son is the most adorable little baggage, but I feel such loss, loss of my dreams for him and us, wondering if he will ever communicate with us, if he will ever be able to participate in childhood rites of passage like Christmas, building a den with friends, or even not needing nappies.  Mostly I am terribly sad that where I once saw him, I now see ASD.  Does anyone else feel like this?  When will the pain become acceptance?  I feel guilty for seeing symptoms and not my son.

    I am looking at various interventions (does everyone do this?) and wonder if anyone has any experience of DIRFloortime or Son-Rise?

    Anyhow, you sound like a wonderful community, I wish you much love and happiness with the special children and adults in your lives.

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