hi everyone. I'm mum to a young adult man with autism. He's in supported living. I first came across the nas when he was about 4 when they were very helpful in letting us access a course they'd arranged. I've been a member for years but didn't realise there was a discussion forum.....really pleased about that! We've certainly had our ups and downs over the yrs, to put it mildly, so I hope I can be a useful contributor and also learn from all of you.
Shell4429 said:I do kind of know it isn't my fault that he has autism but I guess I just feel responsible when he's really down and miserable, because I feel that life has been more of a burden to him than a blessing. He's been taking anti depressants and they are going to try putting up the dose again. At the moment he's in a good phase because he's playing an X Box game online with a girl he met through the internet but when she gets bored with it he'll go on a massive downer. I'm just bracing myself for that at the moment!
I know what you mean about doing the right thing - I decided to give up work in 2008 to support him more on a daily basis but now his DLA has been cut and I've lost the carers allowance and we may have to move - so I thought I was doing the right thing but now I feel I've let him down again - maybe I should have filled out the forms better, and now we're in this position and his peace of mind has been dented as a result. Hey ho. I know there are people with worse problems.
Why do you think your son wouldn't get a girlfriend/partner, I worry that Jack won't be I'm still hopeful that someone will 'get' him one day.
you cant do anything about him having downers if things in life change, its part of autism, all you an do is try to let him do whatever he needs to do when that does happen, as you sound like your alreading doing that as best as you can
you cant do anything else , your doing everything as it is
i can say for certian it wasnt you filling out forms that got the dla cut,
they have cut everyones, and when i say that , i mean it,
literally people who have been on long term disablity and incapacity, for serious issues like osteoarthritis or long term mental illness,
this isnt your fault, thats the way that system is working right now, hopfully they will sort that mess they are making out
they are changing the benefits system, but in the process a lot of people are being let down, the change is needed, but how they are going about it is sickening (if you forgive my pun 
)
Shell4429 said:I do kind of know it isn't my fault that he has autism but I guess I just feel responsible when he's really down and miserable, because I feel that life has been more of a burden to him than a blessing. He's been taking anti depressants and they are going to try putting up the dose again. At the moment he's in a good phase because he's playing an X Box game online with a girl he met through the internet but when she gets bored with it he'll go on a massive downer. I'm just bracing myself for that at the moment!
I know what you mean about doing the right thing - I decided to give up work in 2008 to support him more on a daily basis but now his DLA has been cut and I've lost the carers allowance and we may have to move - so I thought I was doing the right thing but now I feel I've let him down again - maybe I should have filled out the forms better, and now we're in this position and his peace of mind has been dented as a result. Hey ho. I know there are people with worse problems.
Why do you think your son wouldn't get a girlfriend/partner, I worry that Jack won't be I'm still hopeful that someone will 'get' him one day.
you cant do anything about him having downers if things in life change, its part of autism, all you an do is try to let him do whatever he needs to do when that does happen, as you sound like your alreading doing that as best as you can
you cant do anything else , your doing everything as it is
i can say for certian it wasnt you filling out forms that got the dla cut,
they have cut everyones, and when i say that , i mean it,
literally people who have been on long term disablity and incapacity, for serious issues like osteoarthritis or long term mental illness,
this isnt your fault, thats the way that system is working right now, hopfully they will sort that mess they are making out
they are changing the benefits system, but in the process a lot of people are being let down, the change is needed, but how they are going about it is sickening (if you forgive my pun )
