hi

hi everyone.  I'm mum to a young adult man with autism.  He's in supported living. I first came across the nas when he was about 4 when they were very helpful in letting us access a course they'd arranged.  I've been a member for years but didn't realise there was a discussion forum.....really pleased about that!  We've certainly had our ups and downs over the yrs, to put it mildly, so I hope I can be a useful contributor and also learn from all of you.

Parents
  • I do kind of know it isn't my fault that he has autism but I guess I just feel responsible when he's really down and miserable, because I feel that life has been more of a burden to him than a blessing. He's been taking anti depressants and they are going to try putting up the dose again. At the moment he's in a good phase because he's playing an X  Box game online with a girl he met through the internet but when she gets bored with it he'll go on a massive downer. I'm just bracing myself for that at the moment!

    I know what you mean about doing the right thing - I decided to give up work in 2008 to support him more on a daily basis but now his DLA has been cut and I've lost the carers allowance and we may have to move - so I thought I was doing the right thing but now I feel I've let him down again - maybe I should have filled out the forms better, and now we're in this position and his peace of mind has been dented as a result. Hey ho. I know there are people with worse problems.

    Why do you think your son wouldn't get a girlfriend/partner, I worry that Jack won't be I'm still hopeful that someone will 'get' him one day.

Reply
  • I do kind of know it isn't my fault that he has autism but I guess I just feel responsible when he's really down and miserable, because I feel that life has been more of a burden to him than a blessing. He's been taking anti depressants and they are going to try putting up the dose again. At the moment he's in a good phase because he's playing an X  Box game online with a girl he met through the internet but when she gets bored with it he'll go on a massive downer. I'm just bracing myself for that at the moment!

    I know what you mean about doing the right thing - I decided to give up work in 2008 to support him more on a daily basis but now his DLA has been cut and I've lost the carers allowance and we may have to move - so I thought I was doing the right thing but now I feel I've let him down again - maybe I should have filled out the forms better, and now we're in this position and his peace of mind has been dented as a result. Hey ho. I know there are people with worse problems.

    Why do you think your son wouldn't get a girlfriend/partner, I worry that Jack won't be I'm still hopeful that someone will 'get' him one day.

Children
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