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Hello - new to the NAS

missemma04

Hi, I'm Emma,

Step mother to Eve for the last 13 years, who is severly autistic in addition to other difficulties she has as a result of an undiagnosed genetic condition.  She is at the severe end of the spectrum - no speech, mental age of 2/3, tantrums like said mental age, rocking and flapping behaviour, no patience, routine and task centric etc. etc.  I recently became aware of the NSA through fund raising for them, running the Great North Run in September.  I've joined the forum for some help, support, advice etc.  She's with us (me and my husband Andy, her dad) every weekend and has been for the last 13 years.  She'll be 14 in December.  Her behaviour is becoming increasingly challenging and difficult to manage - her physical age combined with her mental age is making that worse.  I'n here for any support and advice from the forum!

Parents

  • Hi missemma,

    I am a mum to a 14yr old with Asperger's who is high functioning (a geek!) but with massive anxiety and social issues. However, I also work with students like your step daughter in a local special needs school. I have to say, it's the hardest but the best job in the whole wide world! I think I will be there till I retire!

    I often wonder how the parents cope, as my child is very different, but I guess I find a way of coping so these parents must do too. Recently I was on a training course lead by a charity called The Challenging Behaviour Foundation. Are you in the UK? They are based in Kent but you should google them. Their training was brilliant and their knowledge, outstanding. It might be worth getting in touch with them.

    Eve (and your husband) are very lucky to have you!

Reply

  • Hi missemma,

    I am a mum to a 14yr old with Asperger's who is high functioning (a geek!) but with massive anxiety and social issues. However, I also work with students like your step daughter in a local special needs school. I have to say, it's the hardest but the best job in the whole wide world! I think I will be there till I retire!

    I often wonder how the parents cope, as my child is very different, but I guess I find a way of coping so these parents must do too. Recently I was on a training course lead by a charity called The Challenging Behaviour Foundation. Are you in the UK? They are based in Kent but you should google them. Their training was brilliant and their knowledge, outstanding. It might be worth getting in touch with them.

    Eve (and your husband) are very lucky to have you!

Children
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