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Hello - new to the NAS

missemma04

Hi, I'm Emma,

Step mother to Eve for the last 13 years, who is severly autistic in addition to other difficulties she has as a result of an undiagnosed genetic condition.  She is at the severe end of the spectrum - no speech, mental age of 2/3, tantrums like said mental age, rocking and flapping behaviour, no patience, routine and task centric etc. etc.  I recently became aware of the NSA through fund raising for them, running the Great North Run in September.  I've joined the forum for some help, support, advice etc.  She's with us (me and my husband Andy, her dad) every weekend and has been for the last 13 years.  She'll be 14 in December.  Her behaviour is becoming increasingly challenging and difficult to manage - her physical age combined with her mental age is making that worse.  I'n here for any support and advice from the forum!

Parents

  • Wow!  Thanks some one!

    She's been in my life since she was 6months old so she's my norm.  And you know, you would cope.  You have no choice.  We at least get some respite as she's only with us at weekends, but it's getting increasingly difficult to take her out and about as her behaviour is so unpredictable.  She has a normal happy healthy older brother who's also struggling with her behaviour now - she's spoiled so many outings over the years.....

    I love her dearly.  Despite her erratic beahviour she can be the cutest, funniest child. 

    Emma x

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  • Wow!  Thanks some one!

    She's been in my life since she was 6months old so she's my norm.  And you know, you would cope.  You have no choice.  We at least get some respite as she's only with us at weekends, but it's getting increasingly difficult to take her out and about as her behaviour is so unpredictable.  She has a normal happy healthy older brother who's also struggling with her behaviour now - she's spoiled so many outings over the years.....

    I love her dearly.  Despite her erratic beahviour she can be the cutest, funniest child. 

    Emma x

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