Severe pain related to ASD

Hello,

I was diagnosed with ASD following many years of pursuing a diagnosis for my bizarre severe neuropathic pain. Initially doctors thought that some of my psychological difficulties and change in behaviour was as a result of the severe pain I suffer, but my husband spotted that I might have ASD. 

Recently I found a study that indicates that difficulties with touch/sensation in ASD might be related to low levels of C fibres, which is also the cause of neuropathic pain. I spent a month in the Neurological Hospital in London, where neurologists tested for all of the things that cause such catastrophic loss of C fibres.

I would be interested to know if anyone else has any numbness or unexplained neuropathic pain in their hands/feet/mouth/face etc. Neuropathic pain can be very varied, anything from aching to electric shocks, stabbing pain, or at my extreme, the skin looking/feeling like it's actually been scalded by boiling water.

I'm currently doing an MA in creative writing, currently looking at some of the way ASD affects language use and altered awareness of self (as it had never occurred to me that constantly thinking of myself in the second/third person was unusual/abnormal until I was 'told off' for it), as I've discovered that there is a good deal of unawareness in academia about the differences between the way we think and write and the way neurotypical people communicate. I am currently working on a collection of short stories and a novel based on my experiences, dealing with undiagnosed ASD in the harsh environment of 1970s industrialised South Wales.

I'm also a fine-art printmaker, my art has been exhibited in many exhibitions and galleries across the UK, although I'm taking a bit of a break from this while I finish my MA. I find great solace from my dogs, my horse and my birds, who are all high-achievers in their own right.

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