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Confused?

allgirls

Hello! We have just had it in black and white that my 4yr old daughter has ASD, although we have known this as parents for the last 2yrs! And that is it, no support or what happens now? We have so many mixed emotions that we are feeling! Relief that we have finally got an answer but confusion also because what happens now? what does this mean now for my daughter?

 she starts school in september im not sure how she will cope with all this change?

I also have a 7yr old and a 6month old, and my 4yr old is so demanding night and day, she is so beautiful what can i do to help her or to understand how she see's the world? I think we are all feeling very lost at the moment ???

Parents

  • Maybe get in touch with your GP to see if there is some kind of support available. Have you told the school that your child has an asd? The NAS will have details of local support groups (i.e volunteer run groups for parents like yourselves). 

    We're in an odd position because our daughter is not diagnosed yet (I have Asperger's and I'm 99% sure she is on the spectrum too) but she is already getting support with certain aspects of her behaviour.

    She's been seeing a play therapist for a few months now who was trying to get her over her hospital fear so she can have some vital scans done but no joy. We've recently seen an occupational therapist about her sensory processing problems. The OT is going in to her school in September to observe her and see what help she needs.

    Other then that nothing else has been offered and the psychiatrist we first saw (in May) has not asked to see us again so there has been no attempt to diagnose anything so I've had to go back to the GP and ask her to refer us directly to an autism clinic (thankfully she's very helpful and supportive).

    I'd suggest reading about ASD's as much as possible, the more info you have the better equipped you are to deal with your child's condition. I'd also give NAS a ring, they've been really helpful when I've felt a bit lost (not just over getting my daughter diagnosed but with my own diagnosis).

Reply

  • Maybe get in touch with your GP to see if there is some kind of support available. Have you told the school that your child has an asd? The NAS will have details of local support groups (i.e volunteer run groups for parents like yourselves). 

    We're in an odd position because our daughter is not diagnosed yet (I have Asperger's and I'm 99% sure she is on the spectrum too) but she is already getting support with certain aspects of her behaviour.

    She's been seeing a play therapist for a few months now who was trying to get her over her hospital fear so she can have some vital scans done but no joy. We've recently seen an occupational therapist about her sensory processing problems. The OT is going in to her school in September to observe her and see what help she needs.

    Other then that nothing else has been offered and the psychiatrist we first saw (in May) has not asked to see us again so there has been no attempt to diagnose anything so I've had to go back to the GP and ask her to refer us directly to an autism clinic (thankfully she's very helpful and supportive).

    I'd suggest reading about ASD's as much as possible, the more info you have the better equipped you are to deal with your child's condition. I'd also give NAS a ring, they've been really helpful when I've felt a bit lost (not just over getting my daughter diagnosed but with my own diagnosis).

Children
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