Hi

Hi, I have joined this forum to see if maybe talking about the problems that I am experiencing will help, maybe someone else has had a similar experience etc.

So about my situation. I am grandfather to a three year old boy and about six months ago he was diagnosed with classic autism and they said at the severe end of the scale. Now six months is not very long and there is an awful lot to learn, also there was no history of autism in my family and so I was unprepared for it.

The little boy, I'll call him Johnny, is not my biggest problem. At three years old Johnny is lovely. He is beautiful, he smiles and laughs constantly and he loves cuddles. No the problem is his dad.

My daughter gets enormous support from her family, myself, her mum, grandmother, aunts and many of the older children but this is limited because her partner insists on living at a distance and collecting the children for the weekend or going up to babysit is a four hour round trip. We can only help so much. Dad doesn't help. He has just spent the weekend down here and he slept in bed till mid day, twice, like he's lucky that he doesn't have kids. Johnny has a four year old sister and a younger brother. My daughter has to look after them all on her own and she is exhausted.

When I talk to him about moving closer he says that there are no decent schools in this area. I get in touch  with the local authority and find an excellent school and he points out that there is a power station nearby. I tell him that is ridiculous and there is no health risk and he says that they cannot consider moving until he can afford a detached house as it wouldn't be fair on the neighbours. It's madness! Except that it isn't, it's autism.

The doctor that provided the diagnosis for my grandson asked a lot of questions about dad's family history. This weekend we had our first open discussion about his autism and his father's. It has never been admitted in the family but it is coming out into the open now.

I can't expect people to be educated and understanding about little Johnny's autism if I can't understand his dad's situation and to help my daughter I have to gain dad's trust. It's all very difficult because it has all been a secret and it's all happening at once and I am just unprepared.

I should say that in many ways Dad is a good parent. He loves his children and they dote on him, he just doesn't help look after them. He has a good job and he is a good provider. He is my daughter's choice of partner and I think that he will be a good father, in his own way.

For now though, my daughter is dropping from exhaustion and all three children are suffering from a lack of attention because she can only do so much. So I try to figure it all out and help her. That's life.

Thanks for reading this.

Parents
  • Hi JackJon,

    It's so hard being a part of the family, but 'removed' from things. I have a very similar situation with my sister and her husband. She has come a long way in accepting her son's difficulties, but her husnbnd refuses to accept things, which means he is no use to her or their son. He too spends very little time with any of their three children, and it is all left to her.

    If I could be so bold as to say so- I don't think it is right to expect them as a family to move to be nearer to you, as much as it means you would be able to help more. I live many miles from my sister and would love to help them more than I can, but it is something we have to bare if we are not prepared to move closer ourselves. Also, the change for someone with autism can be extremely stressful, not to mention the strain on your daughter of moving and having to build a new life for the family.

    What I know from my experience with autism, is that the journey to acceptance is a personal one. For you, for your daughter, your son-in-law, for everyone involved. But hopefully your son-in-law will get there eventually. It may take longer, and it will definitely require you all to support and give him information bit by bit, at times that he's ready to hear it. It's not something we can force, no matter how frustrating it is. It will also take longer if he indeed is on the spectrum himself, as you suggest!

    What you can do is be a listening and understanding ear for them all, support as and when you can, and maybe do some reseacrh for the area they are in- there may be some respite services or something that they could access that would help your daughter get a break or spend some quality time with the other children. Or maybe there's a club that Johnny would like to join, and you could gently suggest that that's something his Dad could take him to. Then he is helping more and will be spending time with Johnny outside the home, which might help him to see his difficulties and needs a little clearer.

    If you are a person in his life who is helpful, respectful and patient, I'm sure you will gain the trust that you seek, which will put you in a much better position to help them all.

    In the meantime- don't worry about being unprepared! We are none of us prepared for the unique and unexpected challenges that autism brings, we just have to learn as much as we can and celebrate the succeses when they come!

    Best of luck to you and your family.

Reply
  • Hi JackJon,

    It's so hard being a part of the family, but 'removed' from things. I have a very similar situation with my sister and her husband. She has come a long way in accepting her son's difficulties, but her husnbnd refuses to accept things, which means he is no use to her or their son. He too spends very little time with any of their three children, and it is all left to her.

    If I could be so bold as to say so- I don't think it is right to expect them as a family to move to be nearer to you, as much as it means you would be able to help more. I live many miles from my sister and would love to help them more than I can, but it is something we have to bare if we are not prepared to move closer ourselves. Also, the change for someone with autism can be extremely stressful, not to mention the strain on your daughter of moving and having to build a new life for the family.

    What I know from my experience with autism, is that the journey to acceptance is a personal one. For you, for your daughter, your son-in-law, for everyone involved. But hopefully your son-in-law will get there eventually. It may take longer, and it will definitely require you all to support and give him information bit by bit, at times that he's ready to hear it. It's not something we can force, no matter how frustrating it is. It will also take longer if he indeed is on the spectrum himself, as you suggest!

    What you can do is be a listening and understanding ear for them all, support as and when you can, and maybe do some reseacrh for the area they are in- there may be some respite services or something that they could access that would help your daughter get a break or spend some quality time with the other children. Or maybe there's a club that Johnny would like to join, and you could gently suggest that that's something his Dad could take him to. Then he is helping more and will be spending time with Johnny outside the home, which might help him to see his difficulties and needs a little clearer.

    If you are a person in his life who is helpful, respectful and patient, I'm sure you will gain the trust that you seek, which will put you in a much better position to help them all.

    In the meantime- don't worry about being unprepared! We are none of us prepared for the unique and unexpected challenges that autism brings, we just have to learn as much as we can and celebrate the succeses when they come!

    Best of luck to you and your family.

Children
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