• Replies 8 replies
  • Subscribers 68 subscribers
  • Views 2147 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Please help

jenwren

Hello all

My name is Jen , me and my Husband have four children and our 9 year old son Jack is having really bad problems :(

We have been fighting for 4 and a half years for a diagnoses for Jack and last year he got misdiagnosed and treated for ADHD . Me and my husband ( and the rest of oour family ) have always known that he has Autism . Jack soils himself and has done for the last 4 and a half years , not only that he has an obsession with Football and Maths .

Only recently we went to CAHMS and the doctor there noticed that Jack cannot maintain eye contact and that he is very over emotional and he can't handle new situations at all . On Monday we saw the Pediatrician and at the end of Jack's appointment I asked what she thought it was and she said that she thinks that Jack is on the autistic spectrum . I was so relieved because I need to know what it is .

i would like to know is his soiling associated with Autism ? He soils himself all day long ( but not at night ) he has not got anything medically wrong with him a he has seen the Gastro and had all the tests .

I got really upset today because our Family support worker said because I am emotional it is making Jack worse :(

Jack is also violent at home and in school . In school he is not allowed any playtime because he is violent to the other children and for his own safety .

Any advice would be wonderful

Thank you for reading this post :) 

Parents

  • I really cannot understand why they want to admit him to clean him out if he's not actually blocked up that's odd and I think you should get some clear answers from the docs as to why they feel he needs that done. If he's going regularly then I don't think he should really be on movicol (or is it a v.low dose?) or senna because that could actually be causing the soiling if it's stimulating his bowels / making the stools softer he may be leaking and not know until it's too late. My daughter only gets blocked up every now and again like I said and her paediatric urologist (she has kidney problems) suggested 1 sachet a day to keep her regular but less if she manages to go regularly on her own.

    I'm baffled really, if he's not aware of the soiling until it's already happened (so he's not doing it on purpose) but the docs are saying it's not medical then I'm stumped really, I hope you get some answers soon.

    Have you asked him why he gets violent? Not just why did you hit/kick/whatever X person? But specifically what happened in the hour or so leading up to him attacking someone.

Reply

  • I really cannot understand why they want to admit him to clean him out if he's not actually blocked up that's odd and I think you should get some clear answers from the docs as to why they feel he needs that done. If he's going regularly then I don't think he should really be on movicol (or is it a v.low dose?) or senna because that could actually be causing the soiling if it's stimulating his bowels / making the stools softer he may be leaking and not know until it's too late. My daughter only gets blocked up every now and again like I said and her paediatric urologist (she has kidney problems) suggested 1 sachet a day to keep her regular but less if she manages to go regularly on her own.

    I'm baffled really, if he's not aware of the soiling until it's already happened (so he's not doing it on purpose) but the docs are saying it's not medical then I'm stumped really, I hope you get some answers soon.

    Have you asked him why he gets violent? Not just why did you hit/kick/whatever X person? But specifically what happened in the hour or so leading up to him attacking someone.

Children
No Data