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Please help

jenwren

Hello all

My name is Jen , me and my Husband have four children and our 9 year old son Jack is having really bad problems :(

We have been fighting for 4 and a half years for a diagnoses for Jack and last year he got misdiagnosed and treated for ADHD . Me and my husband ( and the rest of oour family ) have always known that he has Autism . Jack soils himself and has done for the last 4 and a half years , not only that he has an obsession with Football and Maths .

Only recently we went to CAHMS and the doctor there noticed that Jack cannot maintain eye contact and that he is very over emotional and he can't handle new situations at all . On Monday we saw the Pediatrician and at the end of Jack's appointment I asked what she thought it was and she said that she thinks that Jack is on the autistic spectrum . I was so relieved because I need to know what it is .

i would like to know is his soiling associated with Autism ? He soils himself all day long ( but not at night ) he has not got anything medically wrong with him a he has seen the Gastro and had all the tests .

I got really upset today because our Family support worker said because I am emotional it is making Jack worse :(

Jack is also violent at home and in school . In school he is not allowed any playtime because he is violent to the other children and for his own safety .

Any advice would be wonderful

Thank you for reading this post :) 

Parents

  • Hi Jen :)

    I have a 6yr old who sometimes soils herself but it is related to a chronic bowel condition. Basically she became constipated at one point when she was 3, passed a largish hard stool and then she was afraid to go which meant she held on and ended up with overflow incontinence. It took us over a year with lots of help from a paediatric team to get her going regularly but she still has a problem with it now(she's nearly 7). What happens is she forgets to go, she doesn't like the interruption bathroom breaks cause so she will wait until the last second to go, with her bladder she can only do that for so long but she can stop her poo for days. So she ends up getting constipated and then worries about passing it and we end up increasing her movicol dosage(she's on a satchet a day) to clear her out. She gets over it and she will be regular for months and then randomly she will hold on again.

    Have you asked your son why he soils himself? With my daughter she is completely unaware that she has soiled herself (due to the overflow incontinence) until she changes her underwear or goes to the toilet and sees it's dirty. If your son is aware of doing it ask him why he thinks he's doing it, does he enjoy the feeling of it or perhaps he likes the routine of it (soiling, cleaning up, changing underwear etc and repeat). 

    Have the docs actually checked whether he is blocked up? My daughter had a couple of x-rays done during her time under paediatric care to see just how badly blocked up she was. What medication have they tried him on? Usually they prescribe movicol but my daugter ended up on sodium picosulphate because she was so bad and that was very good that cleared her out no problem. I don't see why they want to admit him if he's not got fecal impaction(sp?). How often is he passing stools? Plus there are usually other signs when the bowel is badly impacted. With my daughter when she was really bad she would hardly eat, she soiled herself at least every hour, she would sometimes wet herself because the stool would be putting pressure on her bladder as well. Her moods were terrible too because she felt so unwell from being so blocked up, plus sometimes you could feel it if you pressed on her abdomen.

Reply

  • Hi Jen :)

    I have a 6yr old who sometimes soils herself but it is related to a chronic bowel condition. Basically she became constipated at one point when she was 3, passed a largish hard stool and then she was afraid to go which meant she held on and ended up with overflow incontinence. It took us over a year with lots of help from a paediatric team to get her going regularly but she still has a problem with it now(she's nearly 7). What happens is she forgets to go, she doesn't like the interruption bathroom breaks cause so she will wait until the last second to go, with her bladder she can only do that for so long but she can stop her poo for days. So she ends up getting constipated and then worries about passing it and we end up increasing her movicol dosage(she's on a satchet a day) to clear her out. She gets over it and she will be regular for months and then randomly she will hold on again.

    Have you asked your son why he soils himself? With my daughter she is completely unaware that she has soiled herself (due to the overflow incontinence) until she changes her underwear or goes to the toilet and sees it's dirty. If your son is aware of doing it ask him why he thinks he's doing it, does he enjoy the feeling of it or perhaps he likes the routine of it (soiling, cleaning up, changing underwear etc and repeat). 

    Have the docs actually checked whether he is blocked up? My daughter had a couple of x-rays done during her time under paediatric care to see just how badly blocked up she was. What medication have they tried him on? Usually they prescribe movicol but my daugter ended up on sodium picosulphate because she was so bad and that was very good that cleared her out no problem. I don't see why they want to admit him if he's not got fecal impaction(sp?). How often is he passing stools? Plus there are usually other signs when the bowel is badly impacted. With my daughter when she was really bad she would hardly eat, she soiled herself at least every hour, she would sometimes wet herself because the stool would be putting pressure on her bladder as well. Her moods were terrible too because she felt so unwell from being so blocked up, plus sometimes you could feel it if you pressed on her abdomen.

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