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Anxious wait for diagnosis for a child with autism symptoms

SmilingBoy

Following our suspicions and advice of friends and day care minders, we took our child to the GP. He is a happy and playful 2.5 yr old boy and looks normal but does not speak too much, walks on his toes quite a lot, not very good with social interactions and has different behaviour.

The GP referred the case to the Children's centre and I am waiting for an appointment. They said it can take upto 22 weeks!

I gave them a follow up call and was told that NHS guidelines requires every case to be seen within 12 weeks so they are looking to schedule a meeting by mid-may with a speech therapist.

What was the procedure for others in this forum to get a diagnosis? Did you get a diagnosis soon? Will a speech therapist be able to diagnose the child? How long did you have to wait?

Parents

  • Anxiety has been the most upsetting aspect of my son's ASD for me to deal with, he's now 14 and only able to go to school on a part time basis after running battles with his school, they don't like it but tough his health and overall wellbeing are as, if not more important than the academics.

    There seems to be very little help and support available during the diagnostic process. Do you get any help from CAMHS? I really wouldn't 'make' your child go to school if she's unable to without great distress. Is there something at school she's afraid of - sensory things, bullying? I would make an appointment to see the SENCO or Head about this, it's never just because they don't want to go to school and never allow them to make you feel that way, you know your child best. Is the Educational Psychologist getting involved with the assessment? they should be advising the school and I was always told that during the assessment school should be treating the child 'as if they had a diagnosis' and putting things in place to help them. I would also keep a written record for yourself of discussions with the school, things agreed.

    After two years in the diagnosis process I think you should start making a nuisance of yourself with these people to get the assessments done. I learnt that you have to fight for everything your child needs.

    Lots of luck

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  • Anxiety has been the most upsetting aspect of my son's ASD for me to deal with, he's now 14 and only able to go to school on a part time basis after running battles with his school, they don't like it but tough his health and overall wellbeing are as, if not more important than the academics.

    There seems to be very little help and support available during the diagnostic process. Do you get any help from CAMHS? I really wouldn't 'make' your child go to school if she's unable to without great distress. Is there something at school she's afraid of - sensory things, bullying? I would make an appointment to see the SENCO or Head about this, it's never just because they don't want to go to school and never allow them to make you feel that way, you know your child best. Is the Educational Psychologist getting involved with the assessment? they should be advising the school and I was always told that during the assessment school should be treating the child 'as if they had a diagnosis' and putting things in place to help them. I would also keep a written record for yourself of discussions with the school, things agreed.

    After two years in the diagnosis process I think you should start making a nuisance of yourself with these people to get the assessments done. I learnt that you have to fight for everything your child needs.

    Lots of luck

Children
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