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Second opinion?

Lorri642

Hi

My 11 year old son went for an ADOS test through CAMHS just over a month ago and I seriously think we need a second opinion. 

The reasons I think we need a second opinion are as follows. Please tell me what you think.

1. Got there expecting a psychologist, but just a Doctor who spent around 45 mins with us, didn't observe him doing anything as I had researched, no watching him read, play, do a puzzle, nothing. He asked a few random questions like if you had 3 wishes what would they be?

2. I had got to see CAMHS after going private and getting a 5 page report asking GP to reffer. He had been turned down before that. This report suggested/recommeded various things including an academic test. The doc we saw said he's not going to bother with that but gave no explanation. But with another breath said he thought he was probably dyslexic (which I don't agree with, I think it's his motor skills and SPD). My son struggles with writting, it causes melt downs. He has trouble leaving finger spaces, writes too big, writes some letters and numbers back to front. Looks very uncomfortable holding a pen or pencil and trying to write to the point that he just now refuses (he's now home schooled).

This doc went on to say he does not like to give diagnosis of autism and why did I want one anyway?

He agreed my son has severe anxiety, but wouldnt believe he had SPD (he defo has SPD) and said it may be anxiety that looks like SPD LOL!!

He told my son that he can "get over" anxious situations by being brave LOL again!!!

It is now well over a month since seeing this doc and he has not even written his report.

Firstly, am I justified in thinking I need a second opinion? and secondly, who do I need to ask for the second opinion? Do I go back to the initial CAMHS person or do I ask at the clinic I saw this doc?

Parents

  • With my son, I think what you say is correct, but much of his anxiety is around certain things not as much people. His fight or flight is over reacting. He has many phobia's and is scared to do things other children think nothing of. He is scared of open spaces. If we go anywhere for an outing, we have to follow other people as he feels safety in numbers. He is also scared to open his bowels and goes for months without going sometimes. I have to clean him up sometimes up to around 10 times a day. He has separation anxiety and I have a hard time even leaving him with his grandma, he will shake and cry, grab hold of me for dear life! Sometimes it will seem a little better, and then boom, he's back to square one. People have never understood and have tried to talk him around, while im stood there thinking you think i havent tried that a million times lol! CBT has been sugested, and although I am sceptical, it's worth a shot, as you say, it needs to be someone that understands. I myself am not autistic and it is all sometimes alien to me even though I try my hardest to work out what is happeneing and how to handle it, but I think thats one of the key reasons we need a diagnosis, so I can then arm myself with the tools to help him.

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  • With my son, I think what you say is correct, but much of his anxiety is around certain things not as much people. His fight or flight is over reacting. He has many phobia's and is scared to do things other children think nothing of. He is scared of open spaces. If we go anywhere for an outing, we have to follow other people as he feels safety in numbers. He is also scared to open his bowels and goes for months without going sometimes. I have to clean him up sometimes up to around 10 times a day. He has separation anxiety and I have a hard time even leaving him with his grandma, he will shake and cry, grab hold of me for dear life! Sometimes it will seem a little better, and then boom, he's back to square one. People have never understood and have tried to talk him around, while im stood there thinking you think i havent tried that a million times lol! CBT has been sugested, and although I am sceptical, it's worth a shot, as you say, it needs to be someone that understands. I myself am not autistic and it is all sometimes alien to me even though I try my hardest to work out what is happeneing and how to handle it, but I think thats one of the key reasons we need a diagnosis, so I can then arm myself with the tools to help him.

Children
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