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refused referral for autism

loulabelle42

Hi all, i am new to all this and im just wondering if there is any parents out there that are having problems trying to get their child seen for a autisic referral?

my 13yr old daughter has moderate cognative learning disabilities but she also has some weired and wonderful traits!!

however even through primary school she never liked change and had real anxiety issues about leaving me at the school gates especially after half term holidays etc.

she couldnt cope with other children falling out and would get very overwhelmed at loud noises, the constant meeting with the school led me to a brick wall and although i kept raising my concerns the teacher (senco ) said there was nothing wrong with her and that i should exept thats just how she learns!!

so we are now in mainstream school and my daughter is finding it harder and harder to go to school. pleading to be home tutored, i went in and yet again raised my concerns and the senco said she has autistic traits ... finally someone is listening to me!!

after endless visits to my gp we finally got a referral back in 2016. obviously the doctor had contacted the school and they go on points score... and it went down hill fast from there. because my daugher is so quiet once she is in school the teacher had said that although my daugher has low self esteem there were no other concerns so we were told my the paeds doctor that they would not put her through any assesments!!

one year on and things are getting worse. my daughter says her head hurts in class because the kids are talking!! she is like a pressure cooker about to go either before going to school or after. she will kick off if we are doing something different to the degree we end up not going and then a hour or so later she comes and apologies but she isnt sure what she has done wrong!!

i have begged my gp to help and twice he has sent referrals off and twice they have cancelled our appointments saying they wont see my daughter and she is how she is because of her learning disabilities!!

sorry to go on but do i push to see a doc or accept what the doctor is saying?

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  • Former Member
    Former Member

    I don't mean my comments to be taken negatively. I have a diagnosis and I am aware that other people get irritated by the way I come across. That isn't an excuse, more of an explanation. hohum.

    The forum is mainly used by people with autism so I think that it is good to give us all a bit of leeway before trying to work out what we really mean when we write something in a post!

    When you are trying to get a diagnosis for someone I think it is important to be aware of the pitfalls and of what the people on the other side of the desk might be thinking. Unfortunately, there are people who think that their children have autism when they don't. I don't think that you sound like that at all and I think that you really should pursue a diagnosis because I do think that it can help. There are also parents who are making their children worse (with or without autism) because they don't know how to be good parents. I don't think you sound like that at all but the doctors etc have to contend with trying to sort the wheat from the chaff so it becomes another hurdle for a parent who is tryuing to do the best for their child.

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  • Former Member
    Former Member

    I don't mean my comments to be taken negatively. I have a diagnosis and I am aware that other people get irritated by the way I come across. That isn't an excuse, more of an explanation. hohum.

    The forum is mainly used by people with autism so I think that it is good to give us all a bit of leeway before trying to work out what we really mean when we write something in a post!

    When you are trying to get a diagnosis for someone I think it is important to be aware of the pitfalls and of what the people on the other side of the desk might be thinking. Unfortunately, there are people who think that their children have autism when they don't. I don't think that you sound like that at all and I think that you really should pursue a diagnosis because I do think that it can help. There are also parents who are making their children worse (with or without autism) because they don't know how to be good parents. I don't think you sound like that at all but the doctors etc have to contend with trying to sort the wheat from the chaff so it becomes another hurdle for a parent who is tryuing to do the best for their child.

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