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refused referral for autism

loulabelle42

Hi all, i am new to all this and im just wondering if there is any parents out there that are having problems trying to get their child seen for a autisic referral?

my 13yr old daughter has moderate cognative learning disabilities but she also has some weired and wonderful traits!!

however even through primary school she never liked change and had real anxiety issues about leaving me at the school gates especially after half term holidays etc.

she couldnt cope with other children falling out and would get very overwhelmed at loud noises, the constant meeting with the school led me to a brick wall and although i kept raising my concerns the teacher (senco ) said there was nothing wrong with her and that i should exept thats just how she learns!!

so we are now in mainstream school and my daughter is finding it harder and harder to go to school. pleading to be home tutored, i went in and yet again raised my concerns and the senco said she has autistic traits ... finally someone is listening to me!!

after endless visits to my gp we finally got a referral back in 2016. obviously the doctor had contacted the school and they go on points score... and it went down hill fast from there. because my daugher is so quiet once she is in school the teacher had said that although my daugher has low self esteem there were no other concerns so we were told my the paeds doctor that they would not put her through any assesments!!

one year on and things are getting worse. my daughter says her head hurts in class because the kids are talking!! she is like a pressure cooker about to go either before going to school or after. she will kick off if we are doing something different to the degree we end up not going and then a hour or so later she comes and apologies but she isnt sure what she has done wrong!!

i have begged my gp to help and twice he has sent referrals off and twice they have cancelled our appointments saying they wont see my daughter and she is how she is because of her learning disabilities!!

sorry to go on but do i push to see a doc or accept what the doctor is saying?

Parents
  • Former Member
    Former Member

    I suspect that financial concerns do have a bearing on some of these decisions but probably not as often as people might think.

    There is a valid concern about mis-diagnosis. The TV series "Born Naughty?" showed that some cases of suspected autism were actually just unskilled parents who needed some additional skills. That program showed how difficult it is for the lay person to tell the difference between naughty and autistic.

    There is also a valid concern about the pathologising of normal life. It seems that it is common in certain areas for people to go into therapy when actually there is nothing wrong with them. Life isn't always a bed of roses but that doesn't mean that you need to go to the doctor to fix it.

    The most common reason for resistance, in my opinion, comes from ignorance and lack of empathy from doctors and professionals. This isn't deliberate or malicious, it is just a fact of life that things aren't ever as straightforward as they could be.

    Another issue that people with autism suffer from is that it is difficult to persuade a doctor of something if you don't have the best advocacy skills yourself. Most people are not particularly skillful at persuasion and this gets even harder when the person, such as someone with autistic traits, has particularly poor persuasion skills.

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  • Former Member
    Former Member

    I suspect that financial concerns do have a bearing on some of these decisions but probably not as often as people might think.

    There is a valid concern about mis-diagnosis. The TV series "Born Naughty?" showed that some cases of suspected autism were actually just unskilled parents who needed some additional skills. That program showed how difficult it is for the lay person to tell the difference between naughty and autistic.

    There is also a valid concern about the pathologising of normal life. It seems that it is common in certain areas for people to go into therapy when actually there is nothing wrong with them. Life isn't always a bed of roses but that doesn't mean that you need to go to the doctor to fix it.

    The most common reason for resistance, in my opinion, comes from ignorance and lack of empathy from doctors and professionals. This isn't deliberate or malicious, it is just a fact of life that things aren't ever as straightforward as they could be.

    Another issue that people with autism suffer from is that it is difficult to persuade a doctor of something if you don't have the best advocacy skills yourself. Most people are not particularly skillful at persuasion and this gets even harder when the person, such as someone with autistic traits, has particularly poor persuasion skills.

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