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refused referral for autism

loulabelle42

Hi all, i am new to all this and im just wondering if there is any parents out there that are having problems trying to get their child seen for a autisic referral?

my 13yr old daughter has moderate cognative learning disabilities but she also has some weired and wonderful traits!!

however even through primary school she never liked change and had real anxiety issues about leaving me at the school gates especially after half term holidays etc.

she couldnt cope with other children falling out and would get very overwhelmed at loud noises, the constant meeting with the school led me to a brick wall and although i kept raising my concerns the teacher (senco ) said there was nothing wrong with her and that i should exept thats just how she learns!!

so we are now in mainstream school and my daughter is finding it harder and harder to go to school. pleading to be home tutored, i went in and yet again raised my concerns and the senco said she has autistic traits ... finally someone is listening to me!!

after endless visits to my gp we finally got a referral back in 2016. obviously the doctor had contacted the school and they go on points score... and it went down hill fast from there. because my daugher is so quiet once she is in school the teacher had said that although my daugher has low self esteem there were no other concerns so we were told my the paeds doctor that they would not put her through any assesments!!

one year on and things are getting worse. my daughter says her head hurts in class because the kids are talking!! she is like a pressure cooker about to go either before going to school or after. she will kick off if we are doing something different to the degree we end up not going and then a hour or so later she comes and apologies but she isnt sure what she has done wrong!!

i have begged my gp to help and twice he has sent referrals off and twice they have cancelled our appointments saying they wont see my daughter and she is how she is because of her learning disabilities!!

sorry to go on but do i push to see a doc or accept what the doctor is saying?

Parents

  • Blossom said:

    A diagnosis is vitally important to children and parents. Without it, they cannot access the support network they need, although admittedly that is becoming harder and harder. Our child needed a diagnosis to be on the Child with Disabilities team and for him to access respite care and to get a really fantastic social worker. Without the diagnosis, he would not have his place at CAMHS where he is monitored and supported by a great psychiatrist. There is no specialist help at school, in most cases, without that diagnosis. Plus for the child as they grow into adulthood and the problems of independence become acute, they need to know why they people to react to them so differently and why they feel so different. Accessing work is pretty hard anyway but for somebody who has no diagnosis and just seen as 'odd' in many cases leads to depression and even suicide. Disability Allowances are vital to help socialize a child and in the situation where they are distructive to keep a safe roof over their heads. Many parents have to give up work as school refusal and 13 weeks of school holidays to manage are impossible..without the diagnosis they are not entitled to the Carer's Allowance that at least recognizes, in a small way, that important role that parents play in helping their child and saving the state vast amounts of money. Autism is not an educational issue alone.

    Fascinating.  I learn something new everyday on this website.  When I was young nobody had heard of autism and there was non of this kind of help available. We just fell through the cracks.  My father who had MH issues himself was openly verbal that no one must find out about me and I was often treated by the family as if I didn't exist.

          

Reply

  • Blossom said:

    A diagnosis is vitally important to children and parents. Without it, they cannot access the support network they need, although admittedly that is becoming harder and harder. Our child needed a diagnosis to be on the Child with Disabilities team and for him to access respite care and to get a really fantastic social worker. Without the diagnosis, he would not have his place at CAMHS where he is monitored and supported by a great psychiatrist. There is no specialist help at school, in most cases, without that diagnosis. Plus for the child as they grow into adulthood and the problems of independence become acute, they need to know why they people to react to them so differently and why they feel so different. Accessing work is pretty hard anyway but for somebody who has no diagnosis and just seen as 'odd' in many cases leads to depression and even suicide. Disability Allowances are vital to help socialize a child and in the situation where they are distructive to keep a safe roof over their heads. Many parents have to give up work as school refusal and 13 weeks of school holidays to manage are impossible..without the diagnosis they are not entitled to the Carer's Allowance that at least recognizes, in a small way, that important role that parents play in helping their child and saving the state vast amounts of money. Autism is not an educational issue alone.

    Fascinating.  I learn something new everyday on this website.  When I was young nobody had heard of autism and there was non of this kind of help available. We just fell through the cracks.  My father who had MH issues himself was openly verbal that no one must find out about me and I was often treated by the family as if I didn't exist.

          

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