someone please help!!!

hi im new to this site and just hoping that someone can help me.  my daughter has had aspergers since birth and has received dla all of her life, with me being her  registered appointee and now following her pip assessment they have said she has scored 0 for every single question and is not entitled to anything at all!!! what am i suppose to do? how can they do this to people? she cant go out anywhere on her own, look after her own money, cook for herself or socialise, yet they are saying she can do all of it!! i really am confused and just dont know what to do. i just cant stop crying. why do pip think its okay to treat people like this? aspergers is not something you grow out of, so why stop my daughters benefits!!! 

Parents
  • My 40 year old daughter has just been told she cannot get it either, but we are asking for a reconsideration on the following grounds - do the following points sound ok to others who have gone through the process? 

    "I write to ask you to reconsider your PIP decision on behalf of my daughter....  The reasons for asking for a reconsideration are as follows:

    You gave her 0 out of 12 for communicating.  This is a ridiculous score when she always has to have someone speak for her on the telephone, and has to have someone with her at all times at any official meetings such as the interview with yourselves, doctors appointments, or in any social situation (which she rarely attends unless it is close family because of this). 

    You gave her 0 out of 8 for reading and understanding complex written information.  Any letters that arrive at her home have to be fully read by someone else (usually her sister or mother) and explained to her.  All forms have to be filled in by someone else.  And all appeals such as this one have to be made by someone else, as X is not able to fight her own case.

    You gave her 4 out of 8 for mixing with other people – the only people X mixes with is her immediate family and very close friends of the family, and when we say mixes she sits alone most of the time and not part of the group, usually doing some craftwork to keep her calm.   We attempted to get her into a daycentre but she had to stop going as she did not mix or speak with the other people that attended or even rarely the carers there, and the noise was too much for her to bear.

    You gave her 0 out of 6 for making budgeting decisions unaided, and mention the fact that she can draw money out and pay her gas etc.  She always has to have someone with her to go to the cash machine to draw money out of her account, and to also stop her from spending that money on too many craft products, and to make sure that it is spent on gas, electricity, rent, food etc. first.  You also mentioned the fact that she did not look unkempt or malnourished, which comment we thank you for, as that is through the efforts of her family rather than through X looking after herself.  Yes, we allow her the independence of living by herself, but everything in her life is monitored by her sister or her mother, and that is not what you seem to have understood from the interview, as X does not understand that side of the situation we find ourselves in.

    You only gave her 4 out of 12 for planning and following a journey.  One of her sisters came with her to her interview and that journey was planned and followed through by her, not X.  She might not have difficulty in walking but she cannot go on a journey alone, as she would get lost or more importantly have a total autistic meltdown – you are lucky with the stress she was under the day of the interview that you did not witness one but that she was coherent on that occasion."

Reply
  • My 40 year old daughter has just been told she cannot get it either, but we are asking for a reconsideration on the following grounds - do the following points sound ok to others who have gone through the process? 

    "I write to ask you to reconsider your PIP decision on behalf of my daughter....  The reasons for asking for a reconsideration are as follows:

    You gave her 0 out of 12 for communicating.  This is a ridiculous score when she always has to have someone speak for her on the telephone, and has to have someone with her at all times at any official meetings such as the interview with yourselves, doctors appointments, or in any social situation (which she rarely attends unless it is close family because of this). 

    You gave her 0 out of 8 for reading and understanding complex written information.  Any letters that arrive at her home have to be fully read by someone else (usually her sister or mother) and explained to her.  All forms have to be filled in by someone else.  And all appeals such as this one have to be made by someone else, as X is not able to fight her own case.

    You gave her 4 out of 8 for mixing with other people – the only people X mixes with is her immediate family and very close friends of the family, and when we say mixes she sits alone most of the time and not part of the group, usually doing some craftwork to keep her calm.   We attempted to get her into a daycentre but she had to stop going as she did not mix or speak with the other people that attended or even rarely the carers there, and the noise was too much for her to bear.

    You gave her 0 out of 6 for making budgeting decisions unaided, and mention the fact that she can draw money out and pay her gas etc.  She always has to have someone with her to go to the cash machine to draw money out of her account, and to also stop her from spending that money on too many craft products, and to make sure that it is spent on gas, electricity, rent, food etc. first.  You also mentioned the fact that she did not look unkempt or malnourished, which comment we thank you for, as that is through the efforts of her family rather than through X looking after herself.  Yes, we allow her the independence of living by herself, but everything in her life is monitored by her sister or her mother, and that is not what you seem to have understood from the interview, as X does not understand that side of the situation we find ourselves in.

    You only gave her 4 out of 12 for planning and following a journey.  One of her sisters came with her to her interview and that journey was planned and followed through by her, not X.  She might not have difficulty in walking but she cannot go on a journey alone, as she would get lost or more importantly have a total autistic meltdown – you are lucky with the stress she was under the day of the interview that you did not witness one but that she was coherent on that occasion."

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