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someone please help!!!

neddy1977

hi im new to this site and just hoping that someone can help me.  my daughter has had aspergers since birth and has received dla all of her life, with me being her  registered appointee and now following her pip assessment they have said she has scored 0 for every single question and is not entitled to anything at all!!! what am i suppose to do? how can they do this to people? she cant go out anywhere on her own, look after her own money, cook for herself or socialise, yet they are saying she can do all of it!! i really am confused and just dont know what to do. i just cant stop crying. why do pip think its okay to treat people like this? aspergers is not something you grow out of, so why stop my daughters benefits!!! 

Parents

  • Appeal the decision. I know this must be frustrating but you need to stay positive. You know exactly what your daughter is entitled to. If you can gather more evidence than you already have, I suggest you do it no matter how insignificant. Every little bit helps.

    One thing I suggest you do (and know this will sound awful so apologies in advance) is to describe every difficulty she has as if it is her worst day. For example, I am very uncomfortable in crowded, loud, bright shops. For the majority of the time I can cope if I listen to loud music on my ipod to counteract it. On my worst day where I am especially sensitive, I will have a severe sensory overload where I can faint or a more embarrassing situation can happen. Of the two scenarios I would put my worst day on my application.

    You have to describe the worst possible day of each unique sympton of your daughters aspergers syndrome for them to get a thorough understanding of her day to day life.

    I really hope this helped you.

    Good luck, stay positive and believe that they will listen to what you have to say xxx

Reply

  • Appeal the decision. I know this must be frustrating but you need to stay positive. You know exactly what your daughter is entitled to. If you can gather more evidence than you already have, I suggest you do it no matter how insignificant. Every little bit helps.

    One thing I suggest you do (and know this will sound awful so apologies in advance) is to describe every difficulty she has as if it is her worst day. For example, I am very uncomfortable in crowded, loud, bright shops. For the majority of the time I can cope if I listen to loud music on my ipod to counteract it. On my worst day where I am especially sensitive, I will have a severe sensory overload where I can faint or a more embarrassing situation can happen. Of the two scenarios I would put my worst day on my application.

    You have to describe the worst possible day of each unique sympton of your daughters aspergers syndrome for them to get a thorough understanding of her day to day life.

    I really hope this helped you.

    Good luck, stay positive and believe that they will listen to what you have to say xxx

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