Experience of adult autism diagnosis process

A couple of days ago I finally attended a formal adult diagnosis session for autism.

I decided beforehand to behave what I considered to be my normal self.  And unsurprisingly I failed by passing.

By this I mean I passed their tests so I failed to be diagnosed as autistic.

In real life people consider me to be an oddball, mental, anti social, reclusive, aloof, unemployable etc etc etc.

The formal diagnosis found me to be not autistic.

I start at the beginning.  I have though long practice and observation of normal people, learnt to fake normal behaviour.  Although many people have told me that I give off uncomfortable vibes and there is always something wrong about me.

The invitation to the assessment mentioned a multidisciplinary team being present.  This turned out to be only two people, a psychiatrist I met before and a social worker.

The assessment!

I managed to find the place and travelled there alone using public transport.  Normal, not autistic!

I was offered a drink, asked and accepted coffee. I'm guessing this was part of the test.  Again normal behaviour, not autistic.

Formal test started with statement that test was designed for small children but they adapt interpretation for adults.

I was asked to place pieces of soft plastic shapes onto a paper outlines.  I wasn't given all pieces and social worker refused to give me rest to complete task.  I asked her, are you treating me like a child and trying to get me to throw a tantrum or have a meltdown?  I also askef her politely for the other pieces.  So failed meltdown test.

She asked me about my last holiday and got me talking.  Then dropped hints about her holiday.  Obvious attempt to see if I was able to hold a two way discussion and pick up social hints.  In this artificial test i can.  But in real life I can not.  So failed conversation test by passing it?

Gave me sets of photos of people with various expressions and asked me to describe what I thought they thinking or expressing.  Found this easy.  But in real life I fail because I fail to distinguish between people being genuine or wearing a mask or just taking the Mickey.

I maintained the appropriate eye contact throughout the session.  I have had years of practice and I make a conscious effort to do it.  In the past I was reprimanded for not looking at people at all when I was speaking to them or when they spoke to me.

I was given a children's story book full of drawings and asked to make up a story based on the drawings.  I made a good attempt so failed this autism test.  Although as a child I was totally lost with these kind of situations and had almost no friends and failed school exams in English language and literature ( I was ungraded. Grade U.  That bad).  

Last page of book had quote : " when pigs will fly" I was asked if I understood what it meant and explain it.  I explained it successfully and added that it was an idiom.

So test was a series of tasks suitable for 5 year olds.  I past so I failed.

As for my personal problems of dealing with people and life in general, there is very little written proof.  And other people's opinions, again very little.  Since most have passed away and I have lost what little contact I had with other people during my life.  And I have always been reclusive.

So end result.  They decided I am not autistic.

 

Parents
  • NAS18906 said:

    [quote][/quote]

    Your scepticism and argumentative approach support the idea that you have autism.Personally, I would guess that you may well end up with a diagnosis so don't give up yet.

    However, I was a bit gob-smacked when watching a program (probably Horizon) on Autism where they showed some tests that they were giving children. I, now aged 59, gave the autistic answers to what were apparently childish tests. Don't dismiss a test because it was for a five year old. Obviously, that doesn't mean that they used suitable tests and that they were properly trained in autism diagnosis. The tests will be mysterious and baffling to people with autism because autistic people lack insight into the social situation that the assessors have to create for their tests.

    At the end of my assessment the consultant explained what it was that had betrayed my autism to him and he explained that, among other things, he had been very obviously and deliberately rude to my wife who was present and I hadn't noticed anything. A normal person would have jumped to her defence but the whole thing just passed me by!

    I only started internet research on autism after the mental health team helping me after my last suicide attempt suggested I might be autistic.  And from that research I think I fit most of the criteria.

    I am guilty of over analysing situations at times.  As for these autism tests.  I was behaving the way I would behave now when I am trying to be natural. ( Or just being myself) .  At the same time as I was doing the tests, I was working out what the tests were really about (reading between the lines) this is due to very extensive advise I've been given by career advisers and internet advice about job interviews.  Where we were told not to take questions or tests literally, but to think about the reasons behind tests.  Or what is really being tested.

    So on each test, I was thinking from an outsider's perspective and an academic point of view.  What is being tested?

    Being greeted as I arrived?  By the actual social worker involved in the test.  (Part of the assessment?)

    Being offered a drink (by the same social worker) Again part of assessment.  And I was taught about job interviews that one is being assessed on social skills and one handles oneself as soon as one arrives and not just in a formal interview room.

    The test with the rubber jigsaws and placing on pattern.  And refusing to give me the extra pieces.  I immediately thought, " looking for meltdown or tantrum in infants". How transparent and juvenile.

    Asking me about my last holiday and then dropping hint that she wanted me to ask her about her holiday.  Test of two way conversation ability.  Again I can cope with test.  But in real life this is very very difficult for me.

    Looking at photos and describing people's emotions or telling stories.  Again test was easy.  But in real life I am useless.

    The flying frogs in the children's story book and making up tale of what it's about.  Testing imagination and story telling.  Again test easy.  In real life and in my childhood I was hopeless.  And I rarely played with other children.

    The "pigs will fly" idiom.  It's only in recent years that I finally understand idioms, sarcasm etc.  I can understand it on TV, but in real life I struggle.

    Maintaining appropriate eye contact.  Respecting personal space etc.  I am have been taught as an adult what is considered normal and I am constantly analysing if I am getting it right.

    So we have this paradox that I fail autism tests because I am always trying to behave normal, or non autistic.  And I can see the reasoning behind the test in order to avoid the autistic response.

    But in real life people realise sooner or later that I am faking the normal responses.  And that there is something not right about me.

    As for my social life.  It is virtually none existent because I just don't understand people.

Reply
  • NAS18906 said:

    [quote][/quote]

    Your scepticism and argumentative approach support the idea that you have autism.Personally, I would guess that you may well end up with a diagnosis so don't give up yet.

    However, I was a bit gob-smacked when watching a program (probably Horizon) on Autism where they showed some tests that they were giving children. I, now aged 59, gave the autistic answers to what were apparently childish tests. Don't dismiss a test because it was for a five year old. Obviously, that doesn't mean that they used suitable tests and that they were properly trained in autism diagnosis. The tests will be mysterious and baffling to people with autism because autistic people lack insight into the social situation that the assessors have to create for their tests.

    At the end of my assessment the consultant explained what it was that had betrayed my autism to him and he explained that, among other things, he had been very obviously and deliberately rude to my wife who was present and I hadn't noticed anything. A normal person would have jumped to her defence but the whole thing just passed me by!

    I only started internet research on autism after the mental health team helping me after my last suicide attempt suggested I might be autistic.  And from that research I think I fit most of the criteria.

    I am guilty of over analysing situations at times.  As for these autism tests.  I was behaving the way I would behave now when I am trying to be natural. ( Or just being myself) .  At the same time as I was doing the tests, I was working out what the tests were really about (reading between the lines) this is due to very extensive advise I've been given by career advisers and internet advice about job interviews.  Where we were told not to take questions or tests literally, but to think about the reasons behind tests.  Or what is really being tested.

    So on each test, I was thinking from an outsider's perspective and an academic point of view.  What is being tested?

    Being greeted as I arrived?  By the actual social worker involved in the test.  (Part of the assessment?)

    Being offered a drink (by the same social worker) Again part of assessment.  And I was taught about job interviews that one is being assessed on social skills and one handles oneself as soon as one arrives and not just in a formal interview room.

    The test with the rubber jigsaws and placing on pattern.  And refusing to give me the extra pieces.  I immediately thought, " looking for meltdown or tantrum in infants". How transparent and juvenile.

    Asking me about my last holiday and then dropping hint that she wanted me to ask her about her holiday.  Test of two way conversation ability.  Again I can cope with test.  But in real life this is very very difficult for me.

    Looking at photos and describing people's emotions or telling stories.  Again test was easy.  But in real life I am useless.

    The flying frogs in the children's story book and making up tale of what it's about.  Testing imagination and story telling.  Again test easy.  In real life and in my childhood I was hopeless.  And I rarely played with other children.

    The "pigs will fly" idiom.  It's only in recent years that I finally understand idioms, sarcasm etc.  I can understand it on TV, but in real life I struggle.

    Maintaining appropriate eye contact.  Respecting personal space etc.  I am have been taught as an adult what is considered normal and I am constantly analysing if I am getting it right.

    So we have this paradox that I fail autism tests because I am always trying to behave normal, or non autistic.  And I can see the reasoning behind the test in order to avoid the autistic response.

    But in real life people realise sooner or later that I am faking the normal responses.  And that there is something not right about me.

    As for my social life.  It is virtually none existent because I just don't understand people.

Children
No Data