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Bowels and PDA

Misstigs

hi,I wondered if anyone had any ideas they could share... my 10 yr old son with PDA doesn't recognise feeling of needing to have his bowel open. this results in poo in pants and hands.  if he's excited this will mean he will catch the poo in his hands, throw it and then run to toilet to finish his movement (Then the dog will bring it in). If he's bored he will soil himself but because he's not moving he will shuffle to toilet Keeping his hands out of it. If he's distracted and not sure he will check using his hands ... yes you know what comes next. Anyway, I tried suggesting that the goosebumps feeling he has could be his way knowing he needs to loo now, but I wonder if you all had any ideas on how to help him recognise the feeling before it's too late. Obviously would be awesome to have a five minute warning but we can't have it all

  • Thank you Quaker, that all makes perfect sense.  I really appreciate your response,you've shared some personal stuff there but your insight to PDA is so useful.  My son certainly has that type of thing with his body, going for a walk not exactly on his terms often brings out some failing part of his body. 

  • Perfect thank you. Real life stuff is so much more helpful.  i think it's a lack of interpretting his feelings rather than routine. But that's only my thoughts on it. So thanks I will have a nose at that.

  • Hi Misstigs,

    Try not to get upset about being referred to www.autism.org pages - lot's of people get that and it often seems to upset more than help.

    Anyway, not sure of how much use this is because you may well have read it already but I thought I mention it in case you didn't. I've got a friend who works in a place for kids with multiple disabilities and he was caring for a child with similar difficulties to the ones your son is having in terms of when to go for a poo and what to do then. He had a book lying around that's called Ready, Set, Potty!: Toilet Training for Children with Autism and other developmental disorders by Brenda Batts. It had lots of (presumably real case) examples in about how people tackled their child's problems, so that would give many different ideas for one problem, as presumably there is no one-fits-all approach or you would have heard about it already. He had the German version so I thought you may not have come across it but I've noticed now that it's actually been translated from English, so guess you may well have seen it before. Don't know if the exact issue you are having is covered but I would be a bit surprised if not on 144 pages.

  • Hi, I'm struggling to see, having read this before asking my question, what is within that page that can help me and my son in our situation. Have I missed something glaring obvious, sleep deprivation can do that.