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Awaiting diagnosis outcome

Plex
over 7 years ago

I have been through 3 assessment sessions and given over 60 pages of experiences struggles and examples from childhood till now.  My mother came with me for support and to give early childhood input.  The whole process I found to be incredibly draining.  

I have my outcome meeting this week.  My appointment is this Wednesday 3rd May.  I'm scared as I'm not sure how I will react to either an ASD diagnosis or something else or nothing.

Either outcome is a big range of possible emotions for me and I'm not sure I will be able to regulate my emotions at all. 

Is anyone else in this situation as well?  I really would like to chat with you or others that can tell me what this outcome appointment is like or was like for them. 

Sorry for a disjointed post, I'm pretty scatty at the moment.

Regards

Plex 

Parents
  • over 7 years ago

    Hi Plex,

    I received my ASD diagnosis recently - two months ago, in fact.  I wasn't sure how I was going to react if I did get a diagnosis of ASD, and when I was told, I didn't feel much different than before.

    In my case, I think it's a case of gradually getting used to seeing myself on the autistic spectrum.  My sister, who is not an autism professional, but works as a TA with autistic children, said it would probably take a while to get used to the diagnosis.  When one is older (I'm 57), living most of one's life in a neurotypical world, you suddenly find that many things you have had problems with are explained. With the diagnosis you are suddenly looking through the world with a new autistic perspective, so to speak.

    I did think to myself many times before the interview how I would react if autism wasn't diagnosed, and I decided I would carry on trying to find out why I seemed to have the problems I did.  As it is, I did receive the diagnosis, and it was certainly a relief, and answered many questions.

    If anything, I would just perhaps consider the outcomes you'd like, and perhaps write them down to familiarise yourself with them, so that whatever the outcome, you have a sort of "map" of what you want to do, and to ask.

    I think it's quite natural to be apprehensive about the day, but don't worry too much about it.

    Hope all goes well for you on Wednesday.

Reply
  • over 7 years ago

    Hi Plex,

    I received my ASD diagnosis recently - two months ago, in fact.  I wasn't sure how I was going to react if I did get a diagnosis of ASD, and when I was told, I didn't feel much different than before.

    In my case, I think it's a case of gradually getting used to seeing myself on the autistic spectrum.  My sister, who is not an autism professional, but works as a TA with autistic children, said it would probably take a while to get used to the diagnosis.  When one is older (I'm 57), living most of one's life in a neurotypical world, you suddenly find that many things you have had problems with are explained. With the diagnosis you are suddenly looking through the world with a new autistic perspective, so to speak.

    I did think to myself many times before the interview how I would react if autism wasn't diagnosed, and I decided I would carry on trying to find out why I seemed to have the problems I did.  As it is, I did receive the diagnosis, and it was certainly a relief, and answered many questions.

    If anything, I would just perhaps consider the outcomes you'd like, and perhaps write them down to familiarise yourself with them, so that whatever the outcome, you have a sort of "map" of what you want to do, and to ask.

    I think it's quite natural to be apprehensive about the day, but don't worry too much about it.

    Hope all goes well for you on Wednesday.

Children
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