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Hello, help please!

Grandma Diane

Hi,

I'm grandma to a 13 year old who is displaying symptoms of mild autism or possibly Aspergers, or possibly ADHD. Even some strangers he comes into contact with are picking up on the fact something is wrong with him including one lady who has worked with kids like him. 

His mum and I have been trying to get a diagnosis so we can get some help for him but feel we are banging our heads against a brick wall.  We went to his GP who has had very little contact with him so doesn't really know him over a year ago to try get him referred to a paediatrician. It has taken over a year to get a reply from the paediatric department who have said they do not feel it is appropriate for him to be seen by them and to have a word with the SENCO teacher at school.  We took a copy of the reply into school and asked for an appointment to see her at the begining of the week but so far have not recieved an appointment or any contact from the school.

Please can anyone here point us in the right direction of what to do and who else we can contact before  hurts himself, someone else or gets himself into trouble of some sort.

Parents

  • Dear Grandma Diane,

    I am a mum of a child with ASD (diagnosed) so I know how frustrated you must be.

    I am a nursery nurse so the knowledge of child's development 

     was very helpful in term of providing evidence.

    Start doing your own record of child's behaviour. You need at least 4 consecutive days of observations in a usual family setting. If what you say is true then the observations will confirm this and you can give it to the GP, school etc (write as you go, use a voice recorder or a camera and then rewrite on a PC as it will be a long read). Furthermore, it will be helpful to get EHCP and disability living allowance in place when/ if diagnosis will be made.

    Inform social services - call a helpline and explain that you are struggling and that you are worried about child's well-being. Councils have a duty of care under children's act if that makes sense. They will advise you how to get the assessment done. Who needs to do it and the possible time frame. (Common assessment framework - "CAFs" are forms and protocols which are done when a family needs a support) 

    Call Contact a family, it is a charity for families with disabled children. Free number 0808 808 3555

    On the internet visit your local council website. There should be a section for families and how to get help if you have any concerns regarding child's wellbeing.

    Hope this helps,

    Regards,

    amplissima

Reply

  • Dear Grandma Diane,

    I am a mum of a child with ASD (diagnosed) so I know how frustrated you must be.

    I am a nursery nurse so the knowledge of child's development 

     was very helpful in term of providing evidence.

    Start doing your own record of child's behaviour. You need at least 4 consecutive days of observations in a usual family setting. If what you say is true then the observations will confirm this and you can give it to the GP, school etc (write as you go, use a voice recorder or a camera and then rewrite on a PC as it will be a long read). Furthermore, it will be helpful to get EHCP and disability living allowance in place when/ if diagnosis will be made.

    Inform social services - call a helpline and explain that you are struggling and that you are worried about child's well-being. Councils have a duty of care under children's act if that makes sense. They will advise you how to get the assessment done. Who needs to do it and the possible time frame. (Common assessment framework - "CAFs" are forms and protocols which are done when a family needs a support) 

    Call Contact a family, it is a charity for families with disabled children. Free number 0808 808 3555

    On the internet visit your local council website. There should be a section for families and how to get help if you have any concerns regarding child's wellbeing.

    Hope this helps,

    Regards,

    amplissima

Children
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