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Nystagmus / Irlens syndrome, anyone?

stranger

I was diagnosed a very long time ago with Nystagmus. For anyone who doesn't know, it's a developmental eye disorder whereby the eyes wobble. Many people will never drive (it's harder for us because our vision varies) and many have other diagnoses alongside.

I was diagnosed with Irlens Syndrome in 2009. This is a condition (I don't quite understand it myself!) in which many use coloured overlays; as white paper is far too bright to read or write on. This may or may not be related to being hypersensitive to light.

There seems to be very little information out there on Autism and either of the conditions I mentioned. Does anyone have either condition, please?

  • Thank you. Have spoke to Nystagmus Network about this before and they don't have a lot of information.

    I had another assessment for irlens syndrome on Monday. It has been recommended that I get coloured glasses, have a different coloured overlay and see if I can get the NHS / PCT to fund the glasses for me. Apparently, it might be the cause of several issues I have.

  • My husband has bad Nystagmus that he was born with along with congenital cataracts. The cataracts have been removed to a point, but it was over 50years ago so things were done different back then, he has very little eye sight and the Nystagmus only adds to the problem.

    You could try contacting the Nystagmus network for more information..

    http://www.nystagmusnet.org/


  • Thanks Sam.

    I was thinking about the glasses too; but my prescription cnages far too much and I've been told that it's going to do nothing for the Nystagmus. (or make it worse - can't remember now)

  • Hi my other son has Myers Irlens syndrome.

    He is very sensitive to the light, gets terible headaches, everything moves on the page and he cant read it very well. However for him he moved on from the overlays to coloured glasses. They have been amazing he has had them for nearly four years now and his academic life has completly turned around. He was always srtuggling with work, he would hide it as he was ashamed of not being able to do it. He spent ages in primary school helping the teachers tidy up, sharpening pencils and voluntering to run erands anything to delay having to work. Now he is about to sit his exams this year and is predicted to get very good marks and wants to go to uni in the future.

    He also wers his glasses like sunglasses all year round and trys to avoid rooms that have strip floresent lights as these are a particular problem for him.

    sam