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newly diagnosed son

hibbsy

Hello there, we are new to this forum and we are looking for help and support that anyone can give please.

Our 11 year old son has just been diagnosed with a-typical autism.He also has a speech and language problem, dyslexia (which we have known about for a couple of years) and a severe anxiety problem.

He has had a severe melt down at school as he is struggling with the pressures of the impending SATS tests this year and feels inadequate against his peers. He does have CAMHS involvement, SENCO support, and we are liasing with an educational psychologist, but we are stunned at this new autism diagnosis and struggling to come to terms with both that, and our sons low self esteem, awful anxiety issues and very low state of mind, it really is heartbreaking and we are struggling to know how to support him best. He has constant outbursts and meltdowns, can be rather aggressive at times, followed by tears upon tears and then becomes withdrawn and negative.

We are completely exhausted and concerned about the future and how we are going to get through this. Any help and advice would be so gratefully recieved!

Parents

  • Hi Hibbsy

    The pessimist in me feels you should take control of this and not leave it to the Ed Psych as before you know it May will be here and I think from reading your last post you feel the same.

    I really would contact the Education Rights Service on this site and also the Parent Partnership Service, you should be able to find their details on your County Council website under schools/education/SEN or put it into a search engine with the county you live in. They are there to support parents and give advice and they will be up to date with laws and have the right contacts etc.

    I'm not sure what an Inclusion Officer is or does but why not ring the Education Department at the County Council and ask to speak to one or an Education Officer. Tell them what was discussed at the meeting with the Educ Psych and say you want to put the wheels in motion now, waiting until the end of May because of SATS is not good enough and not your or your sons problem it's theirs! If your not happy with the way the school are dealing with things write to the Chair of Governors.

    I would also get a notebook and keep as a diary to record things that happen or are said and by whom, something I have personally been glad I did as you can never remember everything.

    Never worry about upsetting these people or going above their heads to get things done - only think of your son and what help he needs, deserves and is entitled to.

    Be strong and don't give up until you get what you want for your son. Lots of luck.

    Moonraker

Reply

  • Hi Hibbsy

    The pessimist in me feels you should take control of this and not leave it to the Ed Psych as before you know it May will be here and I think from reading your last post you feel the same.

    I really would contact the Education Rights Service on this site and also the Parent Partnership Service, you should be able to find their details on your County Council website under schools/education/SEN or put it into a search engine with the county you live in. They are there to support parents and give advice and they will be up to date with laws and have the right contacts etc.

    I'm not sure what an Inclusion Officer is or does but why not ring the Education Department at the County Council and ask to speak to one or an Education Officer. Tell them what was discussed at the meeting with the Educ Psych and say you want to put the wheels in motion now, waiting until the end of May because of SATS is not good enough and not your or your sons problem it's theirs! If your not happy with the way the school are dealing with things write to the Chair of Governors.

    I would also get a notebook and keep as a diary to record things that happen or are said and by whom, something I have personally been glad I did as you can never remember everything.

    Never worry about upsetting these people or going above their heads to get things done - only think of your son and what help he needs, deserves and is entitled to.

    Be strong and don't give up until you get what you want for your son. Lots of luck.

    Moonraker

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