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newly diagnosed son

hibbsy

Hello there, we are new to this forum and we are looking for help and support that anyone can give please.

Our 11 year old son has just been diagnosed with a-typical autism.He also has a speech and language problem, dyslexia (which we have known about for a couple of years) and a severe anxiety problem.

He has had a severe melt down at school as he is struggling with the pressures of the impending SATS tests this year and feels inadequate against his peers. He does have CAMHS involvement, SENCO support, and we are liasing with an educational psychologist, but we are stunned at this new autism diagnosis and struggling to come to terms with both that, and our sons low self esteem, awful anxiety issues and very low state of mind, it really is heartbreaking and we are struggling to know how to support him best. He has constant outbursts and meltdowns, can be rather aggressive at times, followed by tears upon tears and then becomes withdrawn and negative.

We are completely exhausted and concerned about the future and how we are going to get through this. Any help and advice would be so gratefully recieved!

Parents

  • I think you are being passed from pillar to post! I think you should contact the Education Rights Service of NAS for advice as your son has legal rights regarding his education. Also have a look on the website of your LEA under the Special Needs section to see if you can glean any useful info. The link for the page on this site is below:

    www.autism.org.uk/.../advocacy-for-education-service-in-england-and-wales.aspx

    I live in Scotland and the terminology etc is different to England but I have had to take the legal route to get the right help for my 14 year old son, it's been a hard slog (2.5 years) even with CAMHS, Educ Psych etc on my side.

    I wish you and your dear son lots of luck and be prepared to fight, don't let the school fob you off as they will if they think they can get away with it!

Reply

  • I think you are being passed from pillar to post! I think you should contact the Education Rights Service of NAS for advice as your son has legal rights regarding his education. Also have a look on the website of your LEA under the Special Needs section to see if you can glean any useful info. The link for the page on this site is below:

    www.autism.org.uk/.../advocacy-for-education-service-in-england-and-wales.aspx

    I live in Scotland and the terminology etc is different to England but I have had to take the legal route to get the right help for my 14 year old son, it's been a hard slog (2.5 years) even with CAMHS, Educ Psych etc on my side.

    I wish you and your dear son lots of luck and be prepared to fight, don't let the school fob you off as they will if they think they can get away with it!

Children
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