newly diagnosed son

Hello there, we are new to this forum and we are looking for help and support that anyone can give please.

Our 11 year old son has just been diagnosed with a-typical autism.He also has a speech and language problem, dyslexia (which we have known about for a couple of years) and a severe anxiety problem.

He has had a severe melt down at school as he is struggling with the pressures of the impending SATS tests this year and feels inadequate against his peers. He does have CAMHS involvement, SENCO support, and we are liasing with an educational psychologist, but we are stunned at this new autism diagnosis and struggling to come to terms with both that, and our sons low self esteem, awful anxiety issues and very low state of mind, it really is heartbreaking and we are struggling to know how to support him best. He has constant outbursts and meltdowns, can be rather aggressive at times, followed by tears upon tears and then becomes withdrawn and negative.

We are completely exhausted and concerned about the future and how we are going to get through this. Any help and advice would be so gratefully recieved!

Parents
  • Hi all,

    Just a quick update. Have had a phone call from the school, and my son's teacher has told me that she has been in meetings this week with SENCO, Ed Pscych, and CAHMS. They have decided between them that our son will not be sitting the SATS. they have been assessing him and said there is no way he can cope with the tests and it would be unfair to put him through it when he is unlikely to reach a grade of 2 or 3.

    I am totally devastated, although i do understand what they are saying. This year, yr 6 do SATS practice constantly....the whole year is literally taken up with sats, mock sats, and even more sats....that is literally all they do from xmas until may, when they sit them. My son is literally working his socks off in the hope of gaining a level 4 "like everyone else". He will not accept that he won't get the grade and had a massive breakdown over his last SATS test results ( level 2). I understand that the school wants to remove that pressure on him.....but how on earth am i going to tell him? What do i say to him?

    We have also been told at this stage, not to tell him he is autistic as his fragile mental state means it is too much for him to cope with. How do i explain all this to him? It really does feel like too much, i feel like i am swimming in mud, such a dark time and i can't see any way out of it.

    Please can some-one help? Does it get any easier?

    Thankyou once again.

     

Reply
  • Hi all,

    Just a quick update. Have had a phone call from the school, and my son's teacher has told me that she has been in meetings this week with SENCO, Ed Pscych, and CAHMS. They have decided between them that our son will not be sitting the SATS. they have been assessing him and said there is no way he can cope with the tests and it would be unfair to put him through it when he is unlikely to reach a grade of 2 or 3.

    I am totally devastated, although i do understand what they are saying. This year, yr 6 do SATS practice constantly....the whole year is literally taken up with sats, mock sats, and even more sats....that is literally all they do from xmas until may, when they sit them. My son is literally working his socks off in the hope of gaining a level 4 "like everyone else". He will not accept that he won't get the grade and had a massive breakdown over his last SATS test results ( level 2). I understand that the school wants to remove that pressure on him.....but how on earth am i going to tell him? What do i say to him?

    We have also been told at this stage, not to tell him he is autistic as his fragile mental state means it is too much for him to cope with. How do i explain all this to him? It really does feel like too much, i feel like i am swimming in mud, such a dark time and i can't see any way out of it.

    Please can some-one help? Does it get any easier?

    Thankyou once again.

     

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